Archive for the ‘heart’ Category

As a parent, your children pass so many milestones which at the time seem incredible and wondrous: their first tooth, their first smile, first step, first day at school, first night away from home, passing the double digits, and so on. As a parent of a child with CHD, Congenital Heart Disorder, you have additional, special milestones. Surviving the surgery is the first one.

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And it’s not a given. You come face to face with this brutal reality the first day you arrive in the Children’s Heart Ward for your child’s procedure. The specialists sit you down to explain the risks of open heart surgery. The real danger lies in what they call the “bypass.” The surgeons must stop the heart beating, and divert the blood, passing it through a machine while they work on the heart. This creates the threat of blood clotting. They tell you, your child may be permanently brain damaged or die. You have to sign a waiver at this point which basically says you agree to take these risks.

Next, the psychologist shows you a book of the photos of the surgery and graphic detail of the children’s chests afterwards. This is tough love; they say the preparation is necessary because otherwise, the shock for the parents is too great.

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By this stage, you’re quaking in your boots, trying to look strong and brave for your child. You have to be the parent, even though you wish you could run home to your own.

Therefore, surviving the surgery is the first milestone.

My son was an unusual case, and patching the ASD (Atrial Septal defect) did not entirely fix the problem. When they took him off bypass the first time, and closed him, the surgeons saw the blood coming out was still blue instead of red. Something was still wrong. They had to open the heart again, stop the heart and put him on bypass for a second time.

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They discovered an “anomalous” vein going down to the liver. This defect was “unique to him.” They replaced the patch so it covered the hole and the unusual vein. This time his blood ran red. My five year old had survived a double bypass.

He made it through that terrible first day in the Pediatric Intensive Care Unit. “OW! Mama it hurts!” were his first crying words. The second day, he said, “I need to get well!” He made it through the first few days in the High Dependency Unit, and taking his first painful steps walking in the ward. Surviving week one in recovery is the second milestone.

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Then we went home and he managed the first six weeks at home when CHD children must not fall over or take a blow to the torso and getting comfortable enough to sleep every night is the tricky part. Third milestone, ticked!

It typically takes CHD children twelve months to regain normal energy levels. My son had only just started at school when he had to have his surgery. When he returned to school a month later, he could only do half days and I had to give him a piggyback home every day, because he was too tired to walk. A year later, he was at school doing full days and walking both ways. Fourth milestone!

In 2011, we returned to the Children’s Heart Clinic for a check up. Most patients get “discharged” at this point. 95% of cases survive into adulthood which is a good success rate. However my son had been added to the “unusual case book,” and as such, the surgeons asked us to return in five years, so they could check on him again.

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This week, we went back for our second check-up. Returning to the ward brought all the memories back. We peeped in down the hallways. My son remembered that when I’d placed him on the metal bed in the operating theatre, he’d worried that the blanket wasn’t thick enough to keep him warm!

The nurse gave son a check up. We filled out a questionnaire. Yes, he still gets tight-chested sometimes when he runs, yes, he gets blue lips when he does a lot of exercise, and yet, that doesn’t stop him. He plays golf and soccer, he’s learning to play the drums, and he runs around as much as the other kids. He’s fit and healthy.

The nurse gave him an E.C.G. and then an ultra-sound. The heart surgeons conferred and finally announced he was officially “discharged.”

Son and I “high-fived” on the way to the car. Yes. He made the fifth milestone. “Onwards and upwards from here,” as my father would say.

What milestone has made your heart sing lately?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“It doesn’t hurt to be optimistic. You can always cry later.”

— Lucimar Santos de Lima

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

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“The essence of all beautiful art, all great art, is gratitude.” ~ Friedrich Nietzsche.

I missed the mark with a speech at Toastmasters this week. With a topic I knew well: writing, and raising children. I flubbed a few lines, got some words mixed up and forgot a key point, and felt it was an overall disappointment.

It was another one of those notches in the belt of life’s defeats, which turn into teachable moments only in hindsight.

I knew I hadn’t hit the mark even at the time I was speaking. I could feel the audience’s attention slipping. I didn’t have them in the palm of my hand, the way I do when I’m in the zone.

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After the meeting, instead of shaking my hand warmly, there was some avoidance. I came home and watched the video back. I saw that I started the speech with a sigh, which is never a good thing. I used the wrong word in a couple of places without realizing, and that had changed the message. I waffled on at the end. It was a disaster. No wonder people avoided me afterwards.

I felt disappointed. “You picked the wrong word,” I said to myself, watching the footage. “If only you’d stopped and taken a silent breath.”

I berated myself on and off for about half a day. After that, it wasn’t that I felt bad, I felt nothing. I was blank.

Which brings me to the point, how useful are the things we say to ourselves? What effect are they having on our lives?

In my case, I went to that giant therapist in the sky, Facebook, and shared via status update.

Normally, my posts about stuff on Facebook might garner six or so “likes.” When I went back online the next day, I saw that my post had 22 “likes” and there were comments: beautiful, heart-felt encouragement.

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Friends had taken the time to remind me of the steps forward I have taken. The words melted my heart. I sat there and wept into my keyboard like a baby, until my tea went cold.

Later, I dried my face, made a fresh cup of tea, and I could feel the difference within. The veil had lifted. The blankness was gone. I could feel again, I could smile again. I was free. Wow. What a revelation about the power of the right words and a good cry. Thank you again to all my beloved friends.

By sharing with others, by caring about others, and by practising the mindfulness of saying loving words to ourselves and those around us, all manner of ills in this world can be healed.

The right words at the right time can be good medicine.

I remember back in the day, about twenty-five years ago, I read a small, life-changing book called “Creative Visualization” by Australian author, Shakti Gawain. https://www.amazon.com/Creative-Visualization-Meditations-Imagination-Create/dp/1511326948

That was when I became introduced to this idea of the manifestational juju of the words we say to ourselves. I learned we can radically alter the experience we have by changing our inner dialogue. Gawain taught about the benefits of saying positive statements to ourselves, which she called daily affirmations.

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In essence: we can aid and sustain ourselves by saying the right words.

Here’s a good example. About the FB post on the “failure” of my recent speech, friend Sharon Hinckley said wisely, “Could you lose those ‘high expectations’ and just go out there and have fun?” She altered my perception and let in the light by using the right words.

The right phrase can alter the atmosphere of our lives and elevate the tone.

The truth is, our inner dialogue is always going on anyway, and so we might as well use it to our advantage. The first step is to come up with some phrases which work for us. The next step is to remember to say them to ourselves a few times daily. *Tip: try making it part of the daily routine so they end up becoming automatic. *Tip Two: try thinking of three things each day you are grateful for.

To return to the question I started with: how useful are the things we say to ourselves? They’re potentially life-changing, if we use the right words. What we say matters.

Have you ever tried doing affirmations? Do share…

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“To transform your life, you must find a way of being grateful for what you have now.” ~ Rhonda Byrne

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

It’s time for another group posting of the Insecure Writer’s Support Group! Time to release our fears to the world – or offer encouragement to those who are feeling neurotic. If you’d like to join us, click on the tab above and sign up. We post the first Wednesday of every month. I encourage everyone to visit at least a dozen new blogs and leave a comment. Your words might be the encouragement someone needs.

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Every month, the organisers announce a question that members can answer in their IWSG Day post. Remember, the question is optional!!!

April IWSG Day Question: Have you taken advantage of the annual A to Z Challenge in terms of marketing, networking, publicity for your book? What were the results?

Answer: No.

Truth is, I suck at marketing. I remember scoffing a few years back over a writer’s comment on LinkedIn, when he said he wouldn’t be doing any of his own marketing, he was ‘the talent.’ But, since then, I’ve barely done any marketing myself, so who am I to talk? It’s a big failing so I am outing myself, right here.

The reality for all of us as writers in today’s world is that more people are writing and publishing books than ever before in history, and fewer people are reading them. This from John Sargent, CEO of Macmillan: “There are fewer and fewer newspapers out there, and their audiences are shrinking. Discovery is an ever-growing problem. Big titles get bigger, and everything else gets harder and harder to find and sells fewer and fewer copies.”

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Every writer, actor, model, artist, dancer, and musician in the current environment has to sell themselves through social media. We understand how it works and we do our bit to tweet things and share for our friends. Yet, I still have a visceral reaction when someone I’ve been talking to on sm for a while turns around and asks me to buy their book. Just this week, a friend I’ve been talking to and liking posts with, etc, for a year sent me a private message on Facebook asking me to buy her book, and help her book get off the ground by participating in a thunderclap campaign. There’s a part of me that wants to help her as a good person should, and there’s a part of me that’s pissed off with her now. It’s like; she’s betrayed my trust, so I won’t view her connection with me the same way again. I can’t quite get over that feeling of betrayal, and I don’t want to do it to other people.

It’s not that I haven’t tried to tackle marketing.

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Five years ago, I read books on how to market myself as a new author. I started the blog. Tick. I set up my own website. Tick. I joined a bunch of social media sites and started chatting. Tick. I started compiling an email list and writing a regular newsletter. Tick. I made friends with everyone I met and traded details. Tick.

Yet, when my first book, ‘The Or’in of Tane Mahuta’ came out in 2015, not only did I not ask my friends to buy my book, I actually bought sixty copies and gave the books away. I posted packages to the really special friends I’d made on the net, all around the world. I thought I’m not going to make a penny out of this. And, I didn’t.

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*This is not something I would advocate for those writers starting out, who are hoping to make a living out of their work, by the way.

This trait means I can’t quite seem to get over the hump between me as the writer and the speed bump of selling my book to my friends. Lucky for me, profit is not as high on my list of priorities. I go by the adage, when you realize you have enough there’s always plenty. I run a tight ship and I have enough so I don’t need more. I like to measure my success by my personal growth and the good friendships I have made along the way. The online writers community is amazing. My friends are so sustaining and caring. Right now, that’s more important.

I love this life of being a writer, and creating books. I’m editing my second book, ‘The Sasori Empire,’ and the message that comes through towards the end is how important his friendships are becoming to the hero, Aden. Interesting how life and one’s fiction often parallels, isn’t it?

How about you, what marketing do you do?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“If you don’t make mistakes you won’t make anything.” ~ Anon

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The week before last, my eleven-year-old son asked the dreaded question, ‘Is there really a Santa Claus?’

A friend of his at school had said he didn’t believe in Father Christmas because ‘it’s just your parents bringing you presents.’

My boy looked up at me. ‘It’s not you bringing us the presents, is it?’

I stared into his eyes.

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I explained I was doing my bit to uphold a tradition in our family which dated back in time. The original mythology of the big guy delivering ‘small gifts to good children’ comes from St. Nicholas or “Bishop Nicholas.” He was one of the most popular saints in all Christendom, especially in the East. He is said to have been a bishop of Myra (Lycia) in the early 4th century. He was related to doing good works.

Bishop Nicholas dropped three bags of gold down the chimney of a starving family, so the story goes, and the story of his kindness (one of many in his lifetime) spread. People everywhere grabbed onto the idea and began to hang stockings by the fire; in the hope Bishop Nicholas would visit them with his “magical gifts” in the night. Something about this idea caught hold in the human consciousness and took root.

As Brian Conway said, “A true hero of the people, St. Nicholas still delivers his magical gifts each year at Christmastime. The gifts Santa Claus delivers, gifts of hope and joy, bring the joy of giving to all the children of the world.”

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I thought this is the key time to talk about magic and those things that are beyond our ability to explain, before his facility to grasp the ethereal, the subtle is lost. The whole magic of Christmas, to me, lies in the power of possibility thinking. Anything can happen and probably will. That’s where the magic lives, in that gap we create with our minds, by saying, ‘what if?’

I asked, ‘Have you heard of the famous letter, ‘Yes, Virginia, there really is a Santa Claus?

‘No.’

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There’s a famous post from the column of Francis P. Church, who wrote for The Sun, in 1897.

The story goes that a girl called Virginia O’Hanlon wrote a letter to the editor. She said, “Dear Editor, I am eight years old. Some of my little friends say there is no Santa Claus. Papa says, “If you see it in The Sun, it’s so.” Please tell me the truth: is there a Santa Claus?”

Francis Church wrote in reply ~

“Dear Virginia,

Your little friends are wrong. They have been affected by the scepticism of a sceptical age. They do not believe except they see. They think that nothing can be seen which is not comprehensible by their little minds. All minds, Virginia, whether they be men’s or children’s, are little.”

“In this great universe of ours, man is a mere insect, an ant, in his intellect, as compared with the boundless world about him, as measured by the intelligence capable of grasping the whole of truth and knowledge.

“Yes, Virginia, there is a Santa Claus.

“He exists as truly as love and generosity and devotion exist.

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(photography, Tracey Henderson)

“How dreary would be the world if there were no Santa Claus. It would be as dreary as if there were no Virginias.

“There would be no childlike faith then, no poetry, no romance to make tolerable this existence. We should have no enjoyment, except in sense and sight. The eternal light with which childhood fills the world would be extinguished.

“Not believe in Santa Claus? You might as well not believe in fairies! The most real things in the world are those that neither children nor men can see.

“Did you ever see fairies dancing on the lawn? Of course not, but that doesn’t mean they’re not there. Nobody can conceive or imagine all the wonders that are unseen and unseeable in the world.

“Only faith, fancy, poetry, love, romance can push aside that curtain and view and picture the supernal beauty and glory beyond. Is it all real? Ah, Virginia, in this entire world there is nothing else more real and abiding.

“A thousand years from now, Virginia, nay, 10 times 10 thousand years from now, he will continue to make glad the heart of childhood.”

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My son smiled. He asked, ‘Was it you bringing our gifts all these years?’

‘Yes.’

‘I still believe.’

‘Me, too.’

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Talk to you later.

Happy Holidays!

Yvette K. Carol

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Why, sometimes I’ve believed as many as six impossible things before breakfast. ~ Lewis Carroll, Through the Looking Glass

 

 

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Things do not change; we change. ~ Henry David Thoreau

Quantum theory has proven what metaphysicians like Thoreau were trying to say, that when we change our thinking and our views, then our experience shifts.

In light of one of the most divisive U.S. elections in history, a lot of people are feeling upset and/or unsettled. The ripples carry on spreading throughout the rest of the world. Even at our Toastmasters meeting this week, one of the speeches given was about the presidential election.

Our challenge is to take the “high road.”

A teacher of the Hawaiian Kahuna Arts, Erin Kawaihululani Kropidlowski, relates “the high road” to ‘honesty, morality and integrity.’

Despite the confrontations and soap-boxing going on at present, in my belief, the most vital action we can take is to stop looking beyond ourselves and getting caught up in the maelstrom of fear.

After imbibing yet more inflammatory social media today, the term peaceful warrior came to me. I thought, the peaceful warrior takes the high road. I want to be one.

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It is up to each warrior to realize, as Thoreau posited, that we are the ones who need to change. It starts with us. Within our own circles, our families, our friends, our neighbours, people we meet. We must do everything we can to spread the love. That might mean changing our attitudes or approach, or surrendering a little of our fear. Yet, as peaceful warriors, as flowers in the garden of life, it is up to us to show our sunny side up.

This does not mean turn a blind eye. No.

We are even more keenly aware and watchful of those in power than ever before. We hold them to the line. We monitor what is happening. We say something and shine a light on injustice and corruption when it needs to be done. However, we don’t get drawn into hate or fear ourselves.

We always remember love, and we are all of us in need of kindness. We do little things to spread goodwill. We do good deeds. We give of our hearts and minds to those around of us; we give what we have to share.

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As the wonderful, world-renowned yogi and teacher, Gurudev Hamsah Nandatha, said, ‘Your role is to gently encourage everyone.’

My grandmother, the well-known head of the Women’s Voluntary Service in England lived by a motto, a small two word verse from the bible, ‘Be kind.’

Yes, indeed, this is a time of chaos. Yet, as Erin says, ‘when everything is in flux, you’re in the time of greatest creativity.’

Remember, things do not change, we change. The most profound action we can take right now is to refuse to take into our cherished souls the darkness we sometimes see. Are we going to be infected with the virus of negativity going on at present? Do we want to make that thing our new reality? Are we going to then add to that insanity by feeding it with more arguments?

No.

We rise above it.

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We remember we are peaceful warriors and the only way forward is to recognize the heart in others. All others. We stay true to who we know we are inside. We stay true to the better future we choose to know lies ahead.

*The signs of a peaceful warrior:

We choose to take the high road.

We change along the lines of the change we wish to see in the world.

We watch those who are in positions of power and hold them accountable.

We are kind.

We remember to gently encourage everyone.

This is the path to having what my grandmother would call, ‘having the right thoughts,’ and what Gurudev would call ‘thinking which is for the benefit of all sentient beings.’ Yes. I’m in! Who’s with me?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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‘There are two things the world cannot destroy, the love you cultivate and the highest expression of yourself that you insist on being. Every single person in your field are characters, there for the opportunity for you to love, and to walk the high road.’ ~ Erin Kawaihululani Kropidlowski

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