Archive for the ‘gratitude’ Category

As a parent, your children pass so many milestones which at the time seem incredible and wondrous: their first tooth, their first smile, first step, first day at school, first night away from home, passing the double digits, and so on. As a parent of a child with CHD, Congenital Heart Disorder, you have additional, special milestones. Surviving the surgery is the first one.

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And it’s not a given. You come face to face with this brutal reality the first day you arrive in the Children’s Heart Ward for your child’s procedure. The specialists sit you down to explain the risks of open heart surgery. The real danger lies in what they call the “bypass.” The surgeons must stop the heart beating, and divert the blood, passing it through a machine while they work on the heart. This creates the threat of blood clotting. They tell you, your child may be permanently brain damaged or die. You have to sign a waiver at this point which basically says you agree to take these risks.

Next, the psychologist shows you a book of the photos of the surgery and graphic detail of the children’s chests afterwards. This is tough love; they say the preparation is necessary because otherwise, the shock for the parents is too great.

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By this stage, you’re quaking in your boots, trying to look strong and brave for your child. You have to be the parent, even though you wish you could run home to your own.

Therefore, surviving the surgery is the first milestone.

My son was an unusual case, and patching the ASD (Atrial Septal defect) did not entirely fix the problem. When they took him off bypass the first time, and closed him, the surgeons saw the blood coming out was still blue instead of red. Something was still wrong. They had to open the heart again, stop the heart and put him on bypass for a second time.

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They discovered an “anomalous” vein going down to the liver. This defect was “unique to him.” They replaced the patch so it covered the hole and the unusual vein. This time his blood ran red. My five year old had survived a double bypass.

He made it through that terrible first day in the Pediatric Intensive Care Unit. “OW! Mama it hurts!” were his first crying words. The second day, he said, “I need to get well!” He made it through the first few days in the High Dependency Unit, and taking his first painful steps walking in the ward. Surviving week one in recovery is the second milestone.

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Then we went home and he managed the first six weeks at home when CHD children must not fall over or take a blow to the torso and getting comfortable enough to sleep every night is the tricky part. Third milestone, ticked!

It typically takes CHD children twelve months to regain normal energy levels. My son had only just started at school when he had to have his surgery. When he returned to school a month later, he could only do half days and I had to give him a piggyback home every day, because he was too tired to walk. A year later, he was at school doing full days and walking both ways. Fourth milestone!

In 2011, we returned to the Children’s Heart Clinic for a check up. Most patients get “discharged” at this point. 95% of cases survive into adulthood which is a good success rate. However my son had been added to the “unusual case book,” and as such, the surgeons asked us to return in five years, so they could check on him again.

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This week, we went back for our second check-up. Returning to the ward brought all the memories back. We peeped in down the hallways. My son remembered that when I’d placed him on the metal bed in the operating theatre, he’d worried that the blanket wasn’t thick enough to keep him warm!

The nurse gave son a check up. We filled out a questionnaire. Yes, he still gets tight-chested sometimes when he runs, yes, he gets blue lips when he does a lot of exercise, and yet, that doesn’t stop him. He plays golf and soccer, he’s learning to play the drums, and he runs around as much as the other kids. He’s fit and healthy.

The nurse gave him an E.C.G. and then an ultra-sound. The heart surgeons conferred and finally announced he was officially “discharged.”

Son and I “high-fived” on the way to the car. Yes. He made the fifth milestone. “Onwards and upwards from here,” as my father would say.

What milestone has made your heart sing lately?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“It doesn’t hurt to be optimistic. You can always cry later.”

— Lucimar Santos de Lima

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

“The essence of all beautiful art, all great art, is gratitude.” ~ Friedrich Nietzsche.

I missed the mark with a speech at Toastmasters this week. With a topic I knew well: writing, and raising children. I flubbed a few lines, got some words mixed up and forgot a key point, and felt it was an overall disappointment.

It was another one of those notches in the belt of life’s defeats, which turn into teachable moments only in hindsight.

I knew I hadn’t hit the mark even at the time I was speaking. I could feel the audience’s attention slipping. I didn’t have them in the palm of my hand, the way I do when I’m in the zone.

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After the meeting, instead of shaking my hand warmly, there was some avoidance. I came home and watched the video back. I saw that I started the speech with a sigh, which is never a good thing. I used the wrong word in a couple of places without realizing, and that had changed the message. I waffled on at the end. It was a disaster. No wonder people avoided me afterwards.

I felt disappointed. “You picked the wrong word,” I said to myself, watching the footage. “If only you’d stopped and taken a silent breath.”

I berated myself on and off for about half a day. After that, it wasn’t that I felt bad, I felt nothing. I was blank.

Which brings me to the point, how useful are the things we say to ourselves? What effect are they having on our lives?

In my case, I went to that giant therapist in the sky, Facebook, and shared via status update.

Normally, my posts about stuff on Facebook might garner six or so “likes.” When I went back online the next day, I saw that my post had 22 “likes” and there were comments: beautiful, heart-felt encouragement.

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Friends had taken the time to remind me of the steps forward I have taken. The words melted my heart. I sat there and wept into my keyboard like a baby, until my tea went cold.

Later, I dried my face, made a fresh cup of tea, and I could feel the difference within. The veil had lifted. The blankness was gone. I could feel again, I could smile again. I was free. Wow. What a revelation about the power of the right words and a good cry. Thank you again to all my beloved friends.

By sharing with others, by caring about others, and by practising the mindfulness of saying loving words to ourselves and those around us, all manner of ills in this world can be healed.

The right words at the right time can be good medicine.

I remember back in the day, about twenty-five years ago, I read a small, life-changing book called “Creative Visualization” by Australian author, Shakti Gawain. https://www.amazon.com/Creative-Visualization-Meditations-Imagination-Create/dp/1511326948

That was when I became introduced to this idea of the manifestational juju of the words we say to ourselves. I learned we can radically alter the experience we have by changing our inner dialogue. Gawain taught about the benefits of saying positive statements to ourselves, which she called daily affirmations.

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In essence: we can aid and sustain ourselves by saying the right words.

Here’s a good example. About the FB post on the “failure” of my recent speech, friend Sharon Hinckley said wisely, “Could you lose those ‘high expectations’ and just go out there and have fun?” She altered my perception and let in the light by using the right words.

The right phrase can alter the atmosphere of our lives and elevate the tone.

The truth is, our inner dialogue is always going on anyway, and so we might as well use it to our advantage. The first step is to come up with some phrases which work for us. The next step is to remember to say them to ourselves a few times daily. *Tip: try making it part of the daily routine so they end up becoming automatic. *Tip Two: try thinking of three things each day you are grateful for.

To return to the question I started with: how useful are the things we say to ourselves? They’re potentially life-changing, if we use the right words. What we say matters.

Have you ever tried doing affirmations? Do share…

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“To transform your life, you must find a way of being grateful for what you have now.” ~ Rhonda Byrne

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com