Archive for the ‘gratitude’ Category

I got caught on the hop this week. I discovered on Tuesday that I was due to give a speech at Toastmasters the following day, and I had to come up with something in a hurry. I thought about Sam, my sixteen-year-old with Downs’ syndrome. In the four years I’d been in Toastmasters, I had not tackled the big issues. I’d spoken about all kinds of major things, but, I hadn’t had the courage to talk about Sam, and Downs’ syndrome, or anything about my life as a “special” mum. I still haven’t had the courage to talk about about my youngest son, who has Congenital Heart Defect, and the life and death surgery he went through twice at the tender age age of five. Similarly, I have yet to give a speech about my grandmother’s death, or those of my parents (both deceased within the last four years). I didn’t feel I could do them justice.

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But, when Toastmasters asked me to do my first speech of the year, I decided the time had come to delve a little deeper and share more of my personal stories. In Toastmasters, they say that personal stories are the most powerful, they are the speeches people remember. I decided I would share the story of Sam’s arrival in my life and being a parent of a special needs kid. The speech title, ‘The Road Less Travelled,’ comes from the last verse of one of my favourite poems, The Road Not Taken, by Robert Frost

I shall be telling this with a sigh

Somewhere ages and ages hence:

Two roads diverged in a wood, and I—

I took the one less traveled by,

And that has made all the difference.

I opened my speech by recounting the story of Sam’s birth, in more or less these words:

When I was pregnant with my second child, I was thirty-six. My doctor recommended I take an amniocentesis test, which tests for any abnormalities in the child. I agreed and booked in for the test.

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But, the night before I was due to go into the hospital, I woke up at exactly 11 o’clock at night, with an epiphany. I sat up in bed and asked myself,

‘What would you do if there was something wrong with the baby?’

I knew I could not go against my moral code and abort it. So, literally at the eleventh hour, I cancelled the test.

Some months later, after a difficult birth, my midwife handed the baby to me with the words, “I’m sorry, but I believe your son has Downs’ syndrome.”

My world, my life as I knew it up to that point, ended, and a whole new life began in a whole new world. It was one I knew nothing about, and I had a lot to learn!

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Downs’ syndrome is a genetic condition which results from a third copy of the 21st chromosome.

One in six hundred babies are born with Downs’ syndrome every year in New Zealand. The condition entails delayed development, low muscle tone, and this combined with a large tongue makes it very difficult for many Downs’ syndrome kids to talk clearly. 70% of girls with the syndrome will be understood by anyone outside their immediate family and that figure drops to 40-50% for the boys.

The things that our normal babies take for granted, like sitting up, standing, walking, none of these things come easy for a special kid. Every step is hard won. Sam was three-years-old before he could crawl, five before he could walk, eleven before he was potty trained during the day and thirteen before he was dry through the night.

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We special parents say, ‘it’s like taking one step forward, two steps back.’

Therefore every milestone achieved, every hurdle crossed, with these kids is such a triumph. You feel so proud of them you could burst. I know how hard Sam has worked to learn how to do every little thing.

Being a special needs parent has enriched my life. Sam has taught me so much; I have gained so much from his example. He’s taught me humility, patience, tolerance, compassion, forgiveness and how to care for the underdog. I would say most of all, he has taught me how to be present. For Sam, there is no future. He doesn’t have the ability to look ahead and imagine outcomes, there is only right now.

Sam is always present. That lesson in itself has been a gift.

The road less travelled by continues to reap dividends, and I am so grateful I accepted the challenge.

Thank goodness. Imagine what I would have missed out on!

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“There’s not one path. There’s not even the right path. There is only your path.” – Nietzsche

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

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Tuesday the twelfth of February marked the first anniversary of my father’s death. It was a year ago on a Monday that I got the phone call you dread, that someone you love has died. It was my elder sister, who was ringing from the Waikato Hospital.

I think it was seven o’clock in the morning – too early to be good news – “Dad passed away last night.”

I felt sucker punched.

My sister said the hospital then the funeral home was taking dad’s body to do the final things that needed to be done; he would be sent home to us in a day or so.

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I started packing our bags. I spoke to all the people I needed to speak to, excused the boys from school for the week, and we were on the road to my father’s log cabin within the hour.

I’ll never forget the scene, when we drove into dad’s seaside town and neared the mountain he lived on, we found the peak was completely hidden within its own private cloud. It was so unusual I had to stop and take a photo.

I felt the land and the sea surrounding us were speaking directly to our sorrow.

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When we arrived at the empty house that was when the tears flowed. I couldn’t believe dad wouldn’t be there, as he always had been there: reading the paper, watching the 6 o’clock news, doing the crossword, feeding his birds, working in the garden, making food in the kitchen, playing cribbage with us in the evenings. Dad would never be there again.

I looked at my two youngest boys and they looked at me, and I knew I had to be strong for them. Though dad had only been gone a day, certain doors had closed, and a new one had opened, that of my stepping up in rank in our family.

Now, it was my turn to begin the walk of the kaumatua (elder).

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I unpacked our bags, and started preparing food for my sisters, who were driving to Thames Hospital to sort out paperwork, and would then make the trip to us. It all felt surreal. The reality arrived when the funeral home brought dad’s casket to the house a day and a half later.

The funeral director said, ‘the hardest moments for the families are when the lid is first removed and when the lid of the casket is put back on.’

Both moments were heart wrenching. Yet, my father himself looked like he was sleeping, and he was dressed in his very best Sunday suit. We took it in turns after the initial outpouring of grief to sit with him. We didn’t leave dad alone, apart from when we were sleeping.

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Dad spent two and a half days with us at home. We sat with him, held his hands, stroked his hair, sang and talked to him. More family arrived until we were all present. Friends came by, bringing food, neighbours baked cakes and lasagnes.

In the evenings, we siblings sat around the dining table, spending hour after hour going through the old photos. There were boxes to view and sort and distribute between us. Each day, we selected another room of the house to clear out and sort through. The contents of our parents’ lives spread before us.

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Although it almost felt disrespectful to touch their belongings, two people’s lives and a house full of possessions needed to be resolved.

After dad had been moved to his beloved church and had been given a beautiful, moving ceremony, we laid him to rest, alongside mum in the town’s cemetery.

Tuesday 12th 2019 marked the first anniversary of dad’s death. My sister and I travelled to mum’s and dad’s hometown in order to pay our respects.

We visited the cemetery and cleaned the headstone; we put in fresh flowers and solar lights. We spoke to dad and said some prayers and sang a song. We told him and mum that they’re not forgotten. It was sad but it felt like the right thing to do.

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I came home to the city and my kids musing on the fact sometimes growing up can be hard. I felt sorry for my teenagers and their travails.

In the last two weeks, my youngest son has started high school. He’s made several commitments to teams and groups, at the same time undertaking more chores at home. Tonight, when I asked him to do the ‘umpteenth thing,’ he said, “GROWING UP SUCKS!”

It does, man, there’s no other way of putting it. Yet, the tragedies and the hardships we go through, as we get older and lose more people, are what also shape and craft us into better, deeper, more empathetic human beings.

Sometimes, it sucks, yet, that’s okay. It means another phase of life begins.

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Talk to you later.

Yvette K. Carol

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It takes courage to grow up and become who you really are. E.e. Cummings

 

 

Today is Halloween in California where the youngest son continues his dream trip, ‘A Californian Adventure’ thanks to Koru Care NZ. The charitable trust is run by volunteers, who raise funds to send a group of seriously ill and disabled children on the trip of a lifetime to Disneyland each year.

When your child suffers so much due to ill health, as the parent, you want good things to happen to them.

Yet, as the parent, you’re also a bit jaded, and you tend to think, will this trip really be the ‘trip of a lifetime’ or will it be a series of disappointments? However, I’m happy to say the Californian Adventure has been all they promised and more.

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As was detailed in A California Adventure and Californian Adventure, Part 1, in the first week, the kids had been to meet the California Highway Patrol, to see the Hollywood Walk of Fame, to Universal Studios, and SeaWorld, and in the last blog post, the team were on their way to Disneyland. Imagine being a child at Disneyland for the first time, and you can stay all day through to the evening and go on as many rides as you can handle! Ha ha, I can hardly imagine the joy.

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The next day, they went to Knott’s Berry Farm, renamed “Knott’s Scary Farm” for the Day of the Dead. And, then, they visited Disney California Adventure Park.

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I love the fact that the kids aren’t being treated like kids. They aren’t expected to be in bed early every night. The team of adult carers have taken the kids out to see the sights in the evenings as well.

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They’ve given them a taste of the nightlife. They stayed at Disneyland, Knott’s Scary Farm and Disneyland California Adventure until after dark, so they got to watch the parades and ride the lighted roller coasters at night.

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They’ve dined in cool restaurants, seeing the bright lights along the way, and they’ve attended different dinner theatre, things most of these kids would never normally get to do.

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In the second week, they had another fun educational visit, this time to the LA Coast Guard and then a day at the San Diego Zoo.

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Today was a free day, and they’ve been at the beach all day. Tonight, they’ll have to fasten their seatbelts, because they’re going to a Halloween party! Then, the kids have one more day at Disneyland and California Adventure before they finally depart LAX for home.

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I expect the youngest son will come exhausted, satiated, and also, that his life will be forever enriched by this formative experience.

I’ve enjoyed watching on from afar and getting to live every minute vicariously through him, even the scary ones. I’ll let the pictures speak for themselves. The trip of a lifetime? It’s proving to be the trip of at least two!

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44877107_2379645158715632_414595559609860096_nI think one of the greatest things Korucare do with this trip is make it ‘device-free.’ The kids aren’t allowed to take phones or ipads or any sort of handheld gaming devices.

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They are thrown together for two weeks and without their phones and what-have-you, these kids are forced to communicate. And, it’s a beautiful thing to watch. You can see through the photos how close they’ve grown.

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These days, with the research done on the effects of the internet/personal phones/devices on our kids, the research has shown a decrease in the ability of children to hold a conversation.

What a brilliant idea, to make these vacations device-free. It really brings the group of kids together in a way they rarely get to experience, one-on-one, in the moment, and interacting with one another. It’s healthy for them and they need that reminder about how to function in real time with other people.

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At an event like this, where the kids are not allowed to bring their phones, you see them instantly revert to sitting in groups on the floor talking, and playing handgames, it’s the most heartwarming sight in the world. I’m so thrilled and pleased and honoured our family was one of those chosen for this special life-changing event.

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Thank you, once again, to all those who contribute to KoruCare NZ. We’ll never forget this.

Thank you!

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“Reach high, for stars lie hidden in your soul. Dream deep, for every dream precedes the goal!” – P. Vaull Starr

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

Last Saturday, the youngest son left New Zealand along with twenty-six other kids, on this year’s ‘Californian Adventure.’ The trip is organized and run each year by Koru Care NZ, a charitable trust based in the South Island of New Zealand, whose mission statement is ‘making dreams come true for seriously ill and disabled children.’

As the last days counted down before departure, the tension began to mount, which escalated into pure adrenalin. We all got swept up in it. The tide of enthusiasm skipped from the kids, who were racing from all parts of the country to meet at Auckland International Airport, to the parents, whether through the Facebook page they’d set up or via those who could be there in person.

The kids were so happy, it was a force to be reckoned with.

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The photos started flooding into the Facebook page, which has became my favourite port of call every day since. The organisers have been brilliant, because through the steady stream of pictures, we parents have been able to follow along for the ride.

Part one of their grand adventure has been spectacular.

The first day in California was a free day, to give everyone time to get over the jetlag. There were pictures of kids swimming in the pool and eating ice creams and visiting the local food joints. In these pictures, I can see the youngest son is still finding his feet, still feeling a bit awkward with his new companions. Their second day, they took a bus ride to visit the California Highway Patrol where the kids watched demonstrations by the officers and learned about the work they do. They received souvenirs and were allowed to take photographs sitting on the bikes and cars.

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At this stage, the kids and the adults were visibly starting to relax more in the photos, and it seemed they were getting to know one another. I could tell the youngest son had befriended the other heart kid he was sharing a room with. In the pictures, the kids were chatting and getting on.

The whole group dynamic seemed to be becoming more like a family.

The fourth day, they took a bus tour to see the Hollywood Walk of Fame. There was a video taken of the kids screaming when they saw the Hollywood sign. The excitement was infectious. They went to Universal Studios, where they visited Harry Potter’s World and the Staples Centre. In these photos, the youngest son is having fun. There is a hilarious video posted on the KoruCare page of my son and others standing in front of a huge transformer.

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The robot knocked off the son’s cap and said, ‘Pick up your hat.’ The son picked it up and the transformer knocked it off again. This was repeated four times to greater and greater laughter from the crowd, and the funny part was the transformer laughed each time too. The group of kids around the youngest son seem tight-knit, and everyone’s in a great mood. The footage absolutely made my day.

It constantly amazes me how much joy my son’s good fortune is bringing me. I’m so happy for him I could burst!

Today, being the fifth day of their Californian Adventure, the Koru Care team visited SeaWorld in San Diego. That would have been the first time my son has ever seen a display like that, and I’m sure he would have been in awe and wonder.

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The way the trip has been organized, every morning the kids are told where they are going that day, they have no idea beforehand. The youngest son’s carer had explained the intention behind it being ‘that every morning will be like Christmas morning.’

I wish I could be a fly on the wall for tomorrow morning. Because tomorrow they get to go to … drum roll, please … Disneyland!

33674968_10155287787936744_7223338404287610880_nThe reactions should be priceless. My son will be over the moon. As his cousin was pointing out to me today, ‘This is a big step up from having gone on his first roller coaster ride, this year.’ In January, the boys and I had visited our first ever fun fair. The boys couldn’t get enough of the rides, and the youngest son said it was the most fun he’d ever had. So, for a treat, in May, I paid for him and friends and family to go to Rainbow’s End for his thirteenth birthday. He spent a delirious day going on every ride. That was when he went on his first rollercoaster. And here we are, in October, and he’s about to go to Disneyland! He’ll be in seventh heaven.

I’m so grateful to the good folk who do all the fund raising for these trips and the running of Koru Care Nz What an incredible organization. Support in any way you can. Thank you!

 

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“May your dreams be larger than mountains and may you have the courage to scale their summits.” -Harley King

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

One of the things I’ll miss most when the youngest child morphs from child to young adult is the singing. It doesn’t start first thing in the morning, when he’s a zombie and must sit plastered to the couch watching television. The singing starts from the moment of that first voluntary movement towards feeding himself, or finding and turning on his device of choice, he’ll begin to sing random snatches of verse from various songs. Not whole songs, sometimes not even choruses, just a few lines here and there, often repeated before I say, ‘OY,’ and he moves onto the next song that pops into his head. He and his friends have been that way since they were small.

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The songs continue throughout the day until he tires in the evening and starts to wind down with snack foods and the cartoon network.

When the youngest son is playing a game on his computer and talking to a friend through his tablet (who is also playing the same game), in between snatches of chatter about what they’re doing, and actually playing the games, one or other of them is bellowing a rendition of a song. They don’t bat an eyelid. It’s part of their banter, part of their way of bouncing ideas off the world. And it’s not just him, it’s all of them.

Kids sing. It comes as naturally as breathing and there’s something wonderful about that. 

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They don’t run out of song ideas or steam for it either. It’s simply amazing. I admire their fearless lack of self consciousness greatly. Imagine how great it must be to live that way. To be so young and carefree.

The youngest son’s voice is okay. He’s no Josh Grobin, but he can hold a tune. His natural tone when he’s burbling to himself is sweet. It’s just that he can’t seem to sing at a low volume for long, he and his friends have a habit of turning up the volume until, once again, I have to yell, ‘OY’ to get him to lower the decibel level.

I had expected the childlike tendency for song to have expired by now. However, even at the grand old age of thirteen, he still sings the whole day long. Not constantly. It comes and goes, in between activities and school and time spent playing Fortnite and planning to take the world by storm as the next YouTube gamer video star, the next Dan DTM. He still sings.

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I love it. He tapes himself playing online games for his YouTube channel, and in between the banter, he’s singing. I don’t know if he even knows he’s doing it. But, it’s got to be a surefire way to tell the older YouTubers from the younger generation. That’s for sure. Adults are far too self conscious to burst into spontaneous choruses of their favourite tune every other minute.

As a child, I used to sing in all the school productions and sometimes for certain events at church. But, then I grew up, and I stopped. I notice adults, in general, tend to sing, dance and laugh less than children, which strikes me as sad.

At least, for now, I know my youngest son is still a child because he’s still singing. Sure, I get annoyed when he repeats the same line twenty-five times. Sure, I get frustrated when I can’t hear myself think for his warbling. Sure, I get ticked off when he’s still singing and dancing in the living room instead of doing what he’s been told.

Of course, I do, even a tuneful melody can wear your nerves to a frazzle on the hundredth rendition.003 (16)Here are my Top Tips to survive as the parent:

When going on long trips, take ear plugs.

When it gets too loud, ask for an indoor voice.

When the same line is repeated ad nauseum, ask them to stop.

When jobs don’t get done, set a deadline or there will be loss of a treat or privilege.

When the singing and dancing jars the nerves, escape the room!

Even though I shake my head at times, there is still something endearing about hearing your child sing that wrings the heart strings. And, you can’t stay mad for long. As I said in the introduction, I’m sure this trait is the one I’ll miss the most after he’s grown up and gone. So I’ll withstand and cherish him while I can and he’s young.

How do you handle the never-ending melody of your children?  

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Children will not remember you for the material things you provided but for the feeling that you cherished them. ~ Richard L. Evans

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line.

I’ve been working on book three, The Last Tree, in my series, The Chronicles of Aden Weaver, for ten months. In the last two weeks, I have made some huge strides forward, which have entailed two joyous editing experiences, one weekend after another. It put me in mind of the fact that a lot of times, we writers hear about mistakes and pitfalls to avoid. I thought I’d like to share two of the delights of editing a novel.

I like to keep record of how many times I’ve done something—it’s the dad in me, what can I say?—so that’s how I know, I was on the twenty-ninth edit of The Last Tree, when I experienced that holy of holies, the ‘change of mind.’

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This mythical creature, the change of mind, or change of heart, is what happens when you disengage from your normal way of looking at your writing, and you get what is akin to a third-person perspective. It’s the moment when, if you’re lucky, as the writer you get to see and experience your work as if you were the reader. I had been editing for ten months and had done twenty-nine rounds of the material before I had my lightning strike and was able to read the copy in a whole new way.

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Jimmy Braun, photo

That was two weeks ago. I really did feel lucky. I was changing swathes of the story from the second half to the end. I had been steadily bringing the word count down all year, from the overblown 90,845 I started with, to a neater 67,000 words. But that weekend, I was scything out pages of text, losing two whole chapters between Friday and Sunday. Then, at the same time, I couldn’t help myself adding new words, as I saw gaps that needed closing, so the copy ballooned again to over 68,000. And overarching it all was this brilliant feeling of being able to see clearly to the heart of the story, and really see what needed to be changed. The whole weekend was infused with creative imagination.

Then a week ago, when I went back to editing The Last Tree, the experience was completely different.

Last weekend, I’d hoped to taste that particular joy again, that elusive ethereal moment of magic. Every writer or artist knows this; it’s been called being touched by ‘the muse.’ There is an element to it of ‘otherness,’ when you’re immersed in your craft, of these magic moments, of being suspended from earth, of being delivered the ideas and words, of being able to weave worlds.

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But, last weekend it wasn’t to be. I could feel the difference as soon as I started working. This wasn’t about inspiration it was about the building blocks. The second half of The Last Tree had bothered me all year, yet, I just couldn’t seem to get my head around it. I knew something needed fixing. I had tried a few solutions: chopping the prose up a few times, rearranging the order, I took out scenes and added new ones, however a niggling feeling – “the little writer’s voice” – kept nagging me it still wasn’t right.

Last weekend, it was about getting the structure of these final scenes figured out, nailing down the nuts and bolts of the climactic scenes and the resolution of all the story threads. On the Friday night, I sat with a list of the marks I needed to hit, with regards structure, on one side of my computer, and a list of the general editing changes I needed to make, on the other side of my computer.

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By Sunday night, I had re-engineered the final acts of the story. I had welded and hammered them into a new shape. I had rebuilt it better than before. It was a thing of beauty. And, I knew that it was right this time, because of how I felt in my gut and the fact that the little writer’s voice had been silenced.

Only in the nick of time too, as my critique group, The Gang of Four, were nipping at my heels. The girls and I have been swapping chapters since February. Little did they know, I’d been sweating it all year because I knew the end scenes weren’t finalised. So I’m doubly glad to have had a couple of weekends like these, where the flow picked me up and carried me to the finish.

Yeeha! The old adage of B.I.C (Butt In Chair) really works.

Have you had any joyous writing experiences you want to share?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Haruki Murakami says, ‘The good thing about writing books is that you can dream while you are awake.’

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

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In October of this year, my youngest son will be going on the trip of a lifetime. He and eleven other lucky kids from across New Zealand have been chosen to go to Disneyland.

Two weeks ago, we received an invitation to apply for a place on the coveted annual trip with Koru Care New Zealand, through our association with Heart Kids NZ. Yesterday, we got the happy news he had been accepted, and we’ll happily do our bit to help raise money for the trip, as this is such a great opportunity.

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Koru Care New Zealand is a charitable trust established in 1983. It’s run by volunteers ‘making dreams come true for seriously ill and disabled children.’ Heart Kids NZ is another charitable trust. It’s committed to providing lifelong support to those born with congenital heart defects and heart disease.

The youngest of my three boys was born in 2005, with complex congenital heart disorder (or CHD), although we did not know that at the time.

The first clue came when he started coughing at three weeks old, though he had no other symptoms of ill health.

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The cough would come and go from then on, however when he did contract the flu, then his health would plummet fast and the cough would become life threatening and continuous. It took me five years to get a diagnosis, as we went down the road of misdiagnoses and educated guesses and countless trial treatments.

Finally, after trying everything, I went back to our doctor with the whole story. She listened carefully to his chest. Her discovery of a heart murmur led to the hospital tests, which finally confirmed the problem was a hole in his heart or Atrial Septal Defect.

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In 2010, he underwent double bypass open heart surgery. The operation was later added to the “unusual casebook.” The hole in his heart was ‘more than just a hole, there was only a rim between the upper chambers,’ the surgeon, Dr. Elizabeth Rumball, told us later. ‘And his heart had grown a single vein from the liver to the bottom of the heart,’ something she had never seen before. Dr. Rumball had to figure out how create an autologous pericardial patch to fix both issues.

After six hours of surgery, my five-year-old woke in Pediatric Intensive Care, with a gash down his chest, in a lot of pain. His recovery process began there. Only three days out from the surgery, he moved to the high dependency unit and was already taking his first steps. Three days later we were released to go home.

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We’ve come a long way since those days.

They say it takes paediatric heart patients a year to get their energy back and a decade for the body to recover to the pre-surgery state, however, he is in good health these days. The difference with heart kids is that they are a little “fragile,” they don’t have the same stamina as other kids. They are also susceptible to emotional, developmental and behavioural problems.

My son has thrived since the surgery. Gone are the days and nights of coughing. He has quality of life and the prospect of a healthy future ahead, thanks to the wonderful doctors and staff at Starship Children’s Hospital.

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While we were in hospital, we joined the amazing Heart Kids NZ foundation. We put his name down on the list of kids interested in going to “Heart Camp,” a weeklong retreat each summer. From the age of eight, he has gone to camp every year. He’s learned adventure skills like kayaking, abseiling and rock climbing. He’s sat around campfires, and gone swimming, ridden the flying foxes and water slides. He’s made friends and had important experiences of independence. Because he was well known at heart camp, his name came up when Koru Care said they had places for four Heart kids on the Disneyland adventure.

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My son was the right age and state of health to be eligible, so his name went forward with a lot of others. And we were lucky enough to get picked. He was excited when I told him the good news because he has never travelled anywhere or been to a theme park, and he’s always wanted to go. This sweet boy who has been through so many trials in his life, will get to go on the adventure of a lifetime, to Disneyland!

Thank you to Koru Care New Zealand and to Heart Kids NZ and to the medical staff along the way for making all of this possible and for making a boy’s dream come true.

Blessings come in many ways, even when they’re sometimes dressed as catastrophes.

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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If you can dream it, you can do it. ~ Walt Disney

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It’s time for another group posting of the Insecure Writer’s Support Group! Time to release our fears to the world – or offer encouragement to those who are feeling neurotic. If you’d like to join us, click on the tab above and sign up. We post the first Wednesday of every month. I encourage everyone to visit at least a dozen new blogs and leave a comment. Your words might be the encouragement someone needs.

Every month, the organisers announce a question that members can answer in their IWSG Day post. Remember, the question is optional!!!

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OPTIONAL IWSG Day Question: How do you celebrate when you achieve a writing goal/ finish a story?

I start by congratulating myself. Towards the end, when you’re in the last home straits before publication, you’re working so hard, you’re burning the candle at both ends and in between. I’ve worked harder publishing my two books than I have done on any other jobs at any other time in my life.

When the editing and the proof reading needs to be done and redone, until you can’t see straight, you begin to wonder in the last weeks, whether publication is possible. Crossing that finish line is a Herculean feat.

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Achieving the miracles of two books in print, I was so proud of myself I treated myself to some well-earned goodies. Chocolate, wine, and cake.

After I’d patted myself on the back heartily a few more times for finishing the book, then I did what all card-carrying introverts must do. I shut down the writing folders, closed the computer and went on hiatus. Left town basically.

After each book I published, I put away my computer for a while and had a complete break from the blue screen and typing and people.

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I’m the sort who needs to retreat, relax and recharge the batteries by being in nature. We have been very fortunate in our family because my parents retired to a beautiful seaside town, where we have been able to escape from city life for a while. I would escape to the coast and my parents and walk barefoot on the beach, go for swims, and hang out with the family or with my kids or on my own.

It’s important to spend time off the grid, I find it grounding to walk on grass barefoot.

I need to do something definitive like that to signal that to myself that I’ve crossed the finish line.

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I’m only realizing how lucky we have been. It’s only now that both my parents are gone; I become keenly aware of our blessings. What is that thing they say? You don’t realize a good thing until it’s gone.

We’ll still go to the old family homestead sometimes, as some members of the family will be running it as an Air b’n’b. My parents’ little log cabin by the sea still has the most breathtaking scenery; however, as my son put it so perfectly, “It just won’t be the same without grandma and grandpa there.”

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So I’m not sure where I shall escape to for my writer’s retreats the rest of the year. I’m sure I’ll figure something out as I go along.

For me, the final stage of celebrating completing a book is to arrange and run a book launch and party and give it the send off it deserves. That’s the icing on the cake. You take a moment to acknowledge formally the effort you’ve put in, to hopefully sell and sign lots of books, and gather email addresses for your mailing list, as the nature of the business for the Indie, is to always be thinking of marketing.

It’s only after I’ve had a decent break, that I finally feel ready to focus on a new project. Then, I can start the next book with a fresh, new energy.

How about you. How do you celebrate?

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Keep Writing!

Yvette K. Carol

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Wealth is the ability to fully experience life. ~ Henry David Thoreau

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I remember how sad it was when mum died in 2015, but, now, with dad’s passing, it’s a whole other thing. I feel as if my world has turned upside down, and nothing will ever be the same again.

While I still had one parent alive, there was still that level of compassionate protection against the barbs of the world. There was still that parental feeling of someone being there who truly cares about you more than any other person. There was still that wise older person to turn to for advice.

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But, with both of my parents gone, the feeling of support has been severed completely. It’s like going into free fall. I don’t know where earth is.

The only remedy for me in the last two weeks has been working in the garden. I’ve spent the weeks, weeding and digging, and planting trees and flowers. I have needed to walk on the grass barefoot and get my feet back on the ground and plant new things, to remind myself of life on-going and eternal.

Yesterday, I asked my friend about this strange feeling I have of being at sea, disconnected and discombobulated, and she said she still feels the same way about the loss of her parents seven years later. I get the sense this might be something you learn to live with. “But with the years, it hurts less,” said my friend.

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I’m glad to hear that.

Losing the second parent is a broad type of grief that is multi-fold. There is a real loss, an empty feeling. There is a feeling of absence in the upper tier of our family. There is a sense of connections lost with the past. There is no longer a shoulder to cry on.

There is no one to sit and tell the family stories. That’s a hard one. I console myself I’ll have to start telling the family stories for my own children and grandchildren.

Now, I’m the parent. I have to answer my own and my children’s questions.

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So, there is this feeling of roles having changed, and the season of all our lives has irrevocably moved on. One world has sloughed away and a new world has taken its place.

And, it’s a strange and sober world without my mother and father.

I hadn’t realized that they buffered me while alive; they stood between me and heaven. With dad gone now, too, heaven draws a little closer. It’s my turn to stand on the top rung. It’s my turn to walk the walk of the kamatua, the “elder” level of this family. It’s my turn to start the walk of the grandmother, the crone.

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My parents got to live long healthy lives into their eighties. With both of them gone, I’m reminded of my own mortality. As the priest Father Tony Delsink, said in his sermon at dad’s Committal Service, “When someone close to us dies, it’s a wakeup call.”

I keep trying to explain it to friends, but nothing ever quite nails the way I’m feeling: I miss dad, I have new responsibilities, and I’m suddenly old. At the same time, I’m truly deeply appreciating every moment, loving my kids and nature and life, because I have this fresh new awareness of how short life is. How precious.

As a writer, I seek to write and see the feelings transform into words that bloom. That is part of the process of grieving for me. This is my third blog post in as many weeks on the subject of the death of my parents. I think about them and our history together, the times we shared, and the implications of this new loss to our family.

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The changes that are taking place in our family are really profound. There’s a seriousness that has entered my life with my second parent passing away.

My siblings and I get to make big decisions about what to do with my father’s estate, his belongings, the bills, and so on. There are heart rending jobs to do, like washing my dad’s clothes, selling his car, and dismantling some of his beloved, well-overstuffed, cobwebby garage workshop, the inevitable cleaning out of his drawers and cupboards. I’m sure there’ll be other poignant moments too, as we gather to work on dad’s property in the months ahead. The gradual, loving dismantling of a well-lived life.

Then once the work is done, we’ll each get down to the real work, of going on with our lives without him.

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Talk to you later,

Yvette K. Carol

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600 BC, Lao Tzu ~ “The muddiest water is cleared as it is stilled.”

 

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Our fifteen-year-old Sam-the-man has the face of a flower and the temperament to match. People love him. ‘He has something special,’ said a friend, ‘he’s open.’ At the same time, the fact he has Down’s syndrome means he is five years younger mentally than his actual age. So, while his physical self might be fifteen, his mental self is 9-10-years-old. And just as when you have a small child, when he leaves to spend the weekend with his father, the first thing that needs to be done to restore the house to sanity is to clean up.

Having a child with special needs is like raising a perpetual child. There are joys and there is continuous work to be done.

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As the parent to a special needs child, there is only the unknown instead of a finish line in sight. I use the metaphor of ‘the child who can never grow up’ to try and share my understanding thus far.

Sam’s our Peter Pan. God love him, he does a chore when I ask but, as the eternal child, he simply also creates a mess wherever he goes.

There’s always a sea of crumbs extending out from where he’s been sitting and sometimes funny smells, I find old bits of food, sticky patches on tabletops, writing on the wall, or the furniture, and globs of unmentionable things. The bathroom always needs a good clean.

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Sam has no concept of keeping track of things or the consequences of his behaviours. Sometimes, I find a random object has been broken, or – as I did yesterday, I literally walk into a sea of orange juice and discover that Sam had spilt his drink. He’d put the cup away carefully in the kitchen and then moved to a room where there was no sticky juice spilt all over the floor and started playing happily there. He would have been completely oblivious to the possibilities that could follow leaving a sea of liquid on the floor. Luckily, I was barefoot and ran away for a mop and bucket.

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I looked into Sam’s guilt-free, innocent eyes afterwards, and I marvelled at him anew. His motivations are never vindictive, his motivations are always pure. He doesn’t have a mean bone in his body. He’d never hurt someone on purpose. His mind doesn’t work that way. It’s not preoccupied.

Sam doesn’t worry about things, he doesn’t anticipate harm. He’s always right here now in the present moment.

A year ago, it took me six weeks; from the moment the first bruise appeared on his legs, to realise someone was harming him. I discovered the boy called James next to him in the taxi, was a serial abuser, who had a reputation for hurting other kids. Sam had suffered this boy’s advances, an hour each way, to school and back every day, and never said a word, never showed any change in the way he felt about going to school or coming home.

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And he’s intelligent, Sam is smart. He can read, write, use a computer, he can use any device after watching someone use it once. He’s not dumb. Although he can’t speak clearly, he can get his message across. No. It wasn’t about being unable to communicate the fact he was being bullied every day. Rather, it was his ability to take anything in stride and to be in the moment. The bullying didn’t exist the instant he left the van or prior to getting back into it, simply because it wasn’t happening before of after.

Yes, Sam teaches me every day.

Anything that happens in his life, he’s able to take it in stride. It’s like living with a mini guru.

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I remember when Sam was born and we found out all the facts like one baby in 600 is born with Downs’ syndrome, they still don’t know why. We found out the official name is Trisomy 21 which stands for the extra chromosome.

Being classed as a “severe disability,” the embryos can be aborted right up till birth.

His father and I had no idea then, the amazingly transformative journey which lay ahead of us, raising Sam: through all the trials and the tribulations, through the years of watching him struggle, taking one step forward three steps back, to achieve every little milestone other children take for granted.

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It took Sam a year to be able to sit by himself, four years to learn to walk; it took him till the age of ten to be able to walk down a flight of stairs, and thirteen years to become fully toilet trained. Everything he’s learned has been hard-won. Yet, that has made every goal achieved much more satisfying. To watch Sam today wash himself in the bath, dress himself, shave his own stubble, and walk confidently to the taxi in the morning, I brim with pride, because I know how far we’ve come. And I also know how far we have yet to go.

It’s not easy but it’s a real privilege to raise a child with Downs’ syndrome.

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Talk to you later.

Keep Creating!

Yvette K. Carol

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What’s so dreadful about Downs’ syndrome? ~ Sally Phillips

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