Archive for the ‘childhood illness’ Category

When traumatic events happen, you deal with them as best you can. Times goes on. You assume the event is safely in the past. Then, you enter a situation that is similar to the traumatic event and have a panic attack. This is what happened to me this week, and it took me by surprise.
In some cases, life-changing experiences can cause Post Traumatic Stress Disorder. PTSD is a mental illness triggered by peak levels of distress. It can be treated and brought under control with help from a doctor, therapy, and professional guidance. A good friend lived through the big earthquake that rocked Christchurch in 2011. Diagnosed with PTSD, she suffers recurrent nightmares and over-reacts when she hears loud noises.

In my case, what I went through this week was not PTSD but a flashback. A flashback is when you feel drawn back into the traumatic experience as if it is happening all over again.
This week, the youngest son was scheduled for an adenectomy and to have grommets inserted. Surgery is a last resort in my book. But in my son’s case, the specialist believed that his oversized adenoids were causing the loss of hearing in his left ear and inability to breathe through his nose. So it had to be done.
We sat in the hospital waiting room and worked on our crossword, chatting and laughing.
A nurse said, “We’re ready for you now. Follow me.” We followed her along the winding corridors through a pair of heavy blue doors. As the nurse and my son stepped aside, I got my first sight of the room. I took in the surgeons, the anesthetists, the nurses, all in masks and gowns, the skinny operating table, the machines, and the lights. My stomach immediately dropped sickeningly. My skin prickled with goosebumps, and my heart was pounding. I was freaking out. But I couldn’t show it. My son needed me, and I had to be strong for him.

It was scarily like that other time, in August 2010, when he was five years old, and we followed a nurse into a stark white operating theatre. I was straight back there. No time had elapsed in between. In 2010, I looked at my little boy, and I looked at that operating table and felt as if I would throw up with fear, knowing my baby was about to undergo a heart bypass and open-heart surgery.

However, as a parent, you are the captain of the ship. Captains don’t get to freak out. Your job is to stay at the helm until the bitter end.

I had to be calm that day in 2010 and smile for my son. I murmured, “You’re okay, mama loves you,” when he fought the gas mask, and the doctors made me lie on him until the anesthetic took effect and he went limp beneath me.

On Tuesday morning this week, I walked into that operating room, took one glimpse, and stepped back ten years to the scariest time of my life. On Tuesday, my son was only undergoing a minor medical procedure. Yet, I was staring into the white light and hearing angels as if his life was on the line.

As a mature adult today, I have lots of tools to help me weather the storms of life. Whenever something stressful happens, I calm down with meditation, affirmations, yoga, and breathing techniques. But for the private panic attack, I suffered in that hospital room this week, none of my tools helped. I was physically reliving the helpless terror I felt in that other theatre room. According to Rothschild, ‘A flashback can mimic the real thing because it provokes a similar level of stress in the body. The same hormones course through your veins as did at the time of the actual trauma, setting your heart pounding and preparing your muscles and other body systems to react as they did at the time.’

That describes my panic attack perfectly. I stayed with my son until he had fallen unconscious. In the waiting room, I did the only thing I could do. I rang my family and talked to people who cared, and it helped so much.

*According to the site, Trauma Recovery, here are some ideas for managing the situation if you get stuck in a flashback:
NAME the experience as a flashback (example- this is a memory, NOT a recurrence of the actual event)
Use LANGUAGE that categorizes the flashbacks as a “memory” (example- I was attacked, rather than I am being attacked)
Use the SENSES to GROUND self in your CURRENT environment:
Name what you see, feel, hear, smell, etc.
Rub hands together
Touch, feel the chair that is supporting you
Wiggle your toes
Favourite colour- find three things in the room that are “blue”
Name the date, month, year, season
Count backward from 100
Use an object as a grounding tool
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I’ve kept a note of these points in case any of my loved ones need escorting into theatre in the future.
Have you ever suffered a private panic attack or a flashback? What did you do?

Talk to you later.
Keep creating
Yvette Carol
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“I have laid my son on an OR table and kissed him as he fell asleep. I have handed him to a surgeon knowing they would stop his heart and prayed it would beat again. I am a Heart mum.” ~ Suzanne White

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It has been a rollercoaster couple of weeks. It all began when the youngest in the family began having occasional tummy aches.

Of all my children, he is the one who has always been the dream sleeper. Nothing wakes him up once he’s in bed. If I hear him knocking on my door in the middle of the night, I know it’s serious. “My stomach hurts.” I gave him a painkiller and he went back to sleep. After the third night of interrupted sleep for both of us, I took him to see the doctor.

The doctor said it was either appendicitis or inflammation of the lymph nodes, which boys can often experience around his age of fourteen. They did some tests, took his blood, etc. Then we went home to wait for the results.

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The youngest son couldn’t move too far without pain so everywhere we went, everything we did this week, we had to walk slowly, drive slowly over speed bumps, and he would hold onto my arm to walk long distances.

Three days passed with our groaning patient. He was bitterly sad to miss the last week of school for the third term. His squad missed him, too, by the number of text messages that flew back and forth.

When we returned to the doctor’s clinic, she could see no problem with the test results. I said he was still in pain and it was getting worse for him in the middle of the night. The doctor rang the children’s hospital to get a second opinion. A few minutes later she gave us a letter and said we should go over to the hospital.

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We came home and I quickly packed a bag with books, phones, chargers, water, food, our jackets and lip balm. An hour later, my son and I arrived at the children’s hospital. He had to have another blood test, which he gets really nervous about and squeamish. Everything is so amplified when you’re fourteen. In between seeing nurses and doctors, there were long waits in the crowded waiting room. We were told around eight in the evening that the doctors couldn’t figure out what was wrong with him. We’d have to come back in the morning for an ultra-sound.

We were just happy to come home and sleep in our own beds. Unfortunately, the youngest had another bad night, with pain even worse than before. He and I returned to the children’s hospital the next morning.

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The ultrasound process was painful for him. All I could do was hold his hand and make him laugh by talking about all the cakes I’m going to bake him when he’s well enough to eat them.

Two hours later we were discussing his test results with a hospital physician. She explained the scan showed an inflamed lower bowel. This could be a common bowel infection, which will clear up by itself in time, or its inflammatory bowel disease, in which case we get to begin another round of tests with the gastro specialists. They took another blood test, and we will find out definitively what is ailing him within the next few days.

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I always worry about my kids when they get sick. In the past, when they were babies, the anxiety drained me of energy when I needed it most. I knew it was something I had to learn how to control. In the last thirty-five years the thing that’s helped me the most is learning how to keep thinking what my grandmother used to call ‘having the right thoughts.’

Nan was a big believer in The Power of Positive Thinking, and the book by the same name, written by the wonderful Norman Vincent Peale.

These days  it’s been proven that positive people live longer and are healthier than negative thinkers. Positive thoughts make us happier. Happiness floods our brains with dopamine, the one chemical that has the potential to drown out the negative thoughts and anxious feelings.

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It was Pat Riley who said, “If you have a positive attitude and constantly strive to give your best effort, eventually you will overcome your immediate problems and find you are ready for greater challenges.”

Faced with my current situation, what am I going to do? Spend the next three days worrying my son might have bowel disease? No, of course not, it wouldn’t serve me in any way. Besides, I want to demonstrate a good example of how an adult reacts to the crises in life.

I’m going to think about the outcome I prefer, which preserves my energy, which keeps me calm, which makes me feel proactive, which keeps my spirits up, which reassures my children. That’s the power of positive thinking.

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Staying positive doesn’t mean everything will turn out ok. Rather, it is knowing you will be ok no matter how things turn out. – Unknown

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It’s been a week of it. Colds, scrapes, grazes, and a near miss in my car. The week started with that first sneeze, when the parental heart skips a beat, because you know what a sneeze means, and what is coming is not going to be fun for anyone. It is still winter down here in the southern hemisphere.

Last weekend, the boys came home from their father’s place, and the youngest son complained he’d been sick the whole time he’d been there. He was full of a cold, so he stayed home until he was well and went back to school yesterday.

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The middle son started sneezing the same afternoon.

Of course, now I have a cold, too.

It usually happens the parents sail through miraculously while their kids are sick, and then we finally catch it.

I was especially sad for my middle son to catch a cold, because Sam was already feeling poorly. He had taken a nasty fall while running on the playground at school. I could tell from the moment I saw him step out of the taxi bus, that he was not in a good way. He was limping and nursing his hand, palm up, in front of him. Sam has Down syndrome and he can’t tell me what happened. However, I read in his “communication book”—which goes backwards and forwards between his teacher and me—about his fall. Sam’s palm was quite swollen and there were two large skinless patches. He had skinned his knee as well, with little gravel bits added. I felt like a monster when I sprayed the disinfectant on his hand, because he didn’t know what was coming. Sam groaned and pinched down on his forearm, and I said, “I’m sorry, I’m sorry, but I had to do it.” It was a horrible moment. Then I put new dressings on.

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The next day, when I went to change the dressings, I found I’d used ones that stuck to the wounds. Parental fail. Oh, man! To add insult to injury, the poor kid had also caught his brother’s cold. He had to learn how to blow and sneeze one-handed.

I took Sam down to our doctor’s clinic, to have a trained nurse clean and dress the wounds. She said she doesn’t think he’s fractured anything and the sites are not infected. He will need the dressings redone at the clinic in a couple of days.

It’s hard isn’t it, when you take your child to see a medical professional, and you know that the nurse or doctor is going to hurt that child in the name of medicine, and there’s nothing you can do to save them from the pain. Sam looked at me as the nurse wiped the wounds really firmly with some sort of wet wipes and then dry ones, and I could see him flinching, and all I could do was say helpless nothings, “Nearly there” “You’re doing so well” “Almost clean.”

The whole process made his hand and leg hurt so much, he was limping a lot more on the way out than on the way in.

As the parent who has taken them to be subjected to the procedure, you feel guilt. It’s a tough ride this parenting business.

To finish off a gnarly week of it, after I dropped the boys off at their dad’s tonight, I drove around the corner in my station wagon and came to a screeching halt bumper-to-bumper with a large Landover. The road is narrow and there were cars parked on both sides of the street, and we had both moved into the middle to pass through the gap. Luckily for both of us, he saw me and braked, and then I braked. We managed to avoid a collision.

I drove away thinking, what if both of us had been driving a tad faster? I felt very fortunate indeed. And I realized life has been hectic of late. The near-miss was a wake-up call to ‘slow down.’ They boys and I all need to ease the foot off the accelerator and look after our health and ourselves, first and foremost.

In life, difficult things can happen. There can be strife with people, or hard life lessons, coupled with illness and accidents. Those are the times when taking a step back, slowing down and taking a breather becomes really important. Rest. Heal. Return.

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Even the darkest night will end and the sun will rise. – Victor Hugo

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What a kid. My youngest son never fails to amaze me. He’s been a walking list of ailments his entire fourteen years of life. I have had to slowly peel away the “onion rings” of his symptoms in order to get to the source of his real problems. I’ve raised all three of my kids alone. With the middle son’s special needs and the complex health profile of my youngest son, I’ve found that there is help out there, however nothing’s handed to you on a plate. You have to go and find it. You have to ask questions. You’ve got to self advocate. And, you have to keep a watchful eye on your child, keep notes, and keep going to health professionals until you get over the finish line with the answers.

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My son started coughing at two weeks old.

There began the first part of our medical mystery tour together. In his first five years, we were in and out of doctor’s offices because of his cough. We got different diagnoses: hayfever, flu, childhood asthma, and he took lots of medicine. We tried different branches of alternative medicine: he was diagnosed with sour stomach, gluten allergy, and wheat intolerance, and we tried eating in many new ways. We tried Chinese herbal medicine as well, and they all did help a bit.

But nothing stopped the coughing. When he did catch the flu, he and I would spend long, frightening nights as I tried to keep him alive through his continuous bouts. We spent many nights at A&E.

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I kept taking him back to the doctor. He was put on nebulizers, and given a blue and orange inhaler to take daily. At one stage, when things were at their worst, I spent $600 taking him to the doctor in one month. I was determined to get to the bottom of it. And, we did. Finally, on the umpteenth visit, we got a doctor who listened to his chest, and listened again, and said, “I think I hear a heart murmur.”

Those words set us on the course to finally learning what he really had, which was Congenital Heart Disorder.

We were put on the short list for surgery. Four months later, the youngest son underwent double bypass open heart surgery to have a closure of the large Atrial Spetal Defect, and repair of a partial anomalous venous drainage.

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It was a harrowing ordeal he came through with flying colours. After the operation began a lengthy recovery process

It takes kids who have heart surgery a year to get over the anaesthetic, five years to get back to their pre-surgery weight, and ten years for their bodies to get back to their pre-surgery state.

My son had his surgery at the age of five, so next year he will pass the ten year mark. However, back in 2010, after the surgery had fixed his heart and healing was underway, he was still coughing.

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This time, the rounds of visits were confined to a doctor and a homeopath. I felt he was allergic to something, so I requested of my doctor that we be sent for allergy testing. The result was, he was allergic to cats, dogs, fish, dust and egg. On a scale of one to ten, he was allergic to eggs at a ten. Eggs were off the menu. He was put onto daily antihistamines. Our homeopath prescribed homeopathic tinctures to help him get over flus and colds. All good except he went on coughing.

Long story short, we discovered the youngest son had asthma, not the ‘childhood’ variety, but the real kind.

Leapfrog a few years to last week. After years of the youngest son being teased in the family for being deaf, I finally decided to have his hearing tested.

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To my surprise, we discovered he has a retracted eardrum and a loss of hearing. I thought, that makes sense of a lot of things. We’re seeing the specialist in four months, at Otorhinolaryngology.

This week, I followed up on another worry. I’ve always worried that the youngest son injures his ankles easily. A recent sprain wasn’t getting better, so I took him to a physiotherapist and a podiatrist. Turns out, he has a twisted pelvis with one hip more forward than the other. And he has an in turned foot. That explained a few things. Nevertheless, with daily exercises and an insert in his shoe, we can fix what could have been a developmental problem for him, in future. I’m so grateful. (I’m also thinking, what the heck with this kid?)

However, with each new diagnosis life gets easier. We gain new tools. Getting the answers is the thing. And from here, all is possible.

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Failures I consider valuable negative information – Dr. Goddard

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com