Archive for the ‘“big picture” questions’ Category

I got caught on the hop this week. I discovered on Tuesday that I was due to give a speech at Toastmasters the following day, and I had to come up with something in a hurry. I thought about Sam, my sixteen-year-old with Downs’ syndrome. In the four years I’d been in Toastmasters, I had not tackled the big issues. I’d spoken about all kinds of major things, but, I hadn’t had the courage to talk about Sam, and Downs’ syndrome, or anything about my life as a “special” mum. I still haven’t had the courage to talk about about my youngest son, who has Congenital Heart Defect, and the life and death surgery he went through twice at the tender age age of five. Similarly, I have yet to give a speech about my grandmother’s death, or those of my parents (both deceased within the last four years). I didn’t feel I could do them justice.

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But, when Toastmasters asked me to do my first speech of the year, I decided the time had come to delve a little deeper and share more of my personal stories. In Toastmasters, they say that personal stories are the most powerful, they are the speeches people remember. I decided I would share the story of Sam’s arrival in my life and being a parent of a special needs kid. The speech title, ‘The Road Less Travelled,’ comes from the last verse of one of my favourite poems, The Road Not Taken, by Robert Frost

I shall be telling this with a sigh

Somewhere ages and ages hence:

Two roads diverged in a wood, and I—

I took the one less traveled by,

And that has made all the difference.

I opened my speech by recounting the story of Sam’s birth, in more or less these words:

When I was pregnant with my second child, I was thirty-six. My doctor recommended I take an amniocentesis test, which tests for any abnormalities in the child. I agreed and booked in for the test.

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But, the night before I was due to go into the hospital, I woke up at exactly 11 o’clock at night, with an epiphany. I sat up in bed and asked myself,

‘What would you do if there was something wrong with the baby?’

I knew I could not go against my moral code and abort it. So, literally at the eleventh hour, I cancelled the test.

Some months later, after a difficult birth, my midwife handed the baby to me with the words, “I’m sorry, but I believe your son has Downs’ syndrome.”

My world, my life as I knew it up to that point, ended, and a whole new life began in a whole new world. It was one I knew nothing about, and I had a lot to learn!

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Downs’ syndrome is a genetic condition which results from a third copy of the 21st chromosome.

One in six hundred babies are born with Downs’ syndrome every year in New Zealand. The condition entails delayed development, low muscle tone, and this combined with a large tongue makes it very difficult for many Downs’ syndrome kids to talk clearly. 70% of girls with the syndrome will be understood by anyone outside their immediate family and that figure drops to 40-50% for the boys.

The things that our normal babies take for granted, like sitting up, standing, walking, none of these things come easy for a special kid. Every step is hard won. Sam was three-years-old before he could crawl, five before he could walk, eleven before he was potty trained during the day and thirteen before he was dry through the night.

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We special parents say, ‘it’s like taking one step forward, two steps back.’

Therefore every milestone achieved, every hurdle crossed, with these kids is such a triumph. You feel so proud of them you could burst. I know how hard Sam has worked to learn how to do every little thing.

Being a special needs parent has enriched my life. Sam has taught me so much; I have gained so much from his example. He’s taught me humility, patience, tolerance, compassion, forgiveness and how to care for the underdog. I would say most of all, he has taught me how to be present. For Sam, there is no future. He doesn’t have the ability to look ahead and imagine outcomes, there is only right now.

Sam is always present. That lesson in itself has been a gift.

The road less travelled by continues to reap dividends, and I am so grateful I accepted the challenge.

Thank goodness. Imagine what I would have missed out on!

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“There’s not one path. There’s not even the right path. There is only your path.” – Nietzsche

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

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Tuesday the twelfth of February marked the first anniversary of my father’s death. It was a year ago on a Monday that I got the phone call you dread, that someone you love has died. It was my elder sister, who was ringing from the Waikato Hospital.

I think it was seven o’clock in the morning – too early to be good news – “Dad passed away last night.”

I felt sucker punched.

My sister said the hospital then the funeral home was taking dad’s body to do the final things that needed to be done; he would be sent home to us in a day or so.

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I started packing our bags. I spoke to all the people I needed to speak to, excused the boys from school for the week, and we were on the road to my father’s log cabin within the hour.

I’ll never forget the scene, when we drove into dad’s seaside town and neared the mountain he lived on, we found the peak was completely hidden within its own private cloud. It was so unusual I had to stop and take a photo.

I felt the land and the sea surrounding us were speaking directly to our sorrow.

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When we arrived at the empty house that was when the tears flowed. I couldn’t believe dad wouldn’t be there, as he always had been there: reading the paper, watching the 6 o’clock news, doing the crossword, feeding his birds, working in the garden, making food in the kitchen, playing cribbage with us in the evenings. Dad would never be there again.

I looked at my two youngest boys and they looked at me, and I knew I had to be strong for them. Though dad had only been gone a day, certain doors had closed, and a new one had opened, that of my stepping up in rank in our family.

Now, it was my turn to begin the walk of the kaumatua (elder).

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I unpacked our bags, and started preparing food for my sisters, who were driving to Thames Hospital to sort out paperwork, and would then make the trip to us. It all felt surreal. The reality arrived when the funeral home brought dad’s casket to the house a day and a half later.

The funeral director said, ‘the hardest moments for the families are when the lid is first removed and when the lid of the casket is put back on.’

Both moments were heart wrenching. Yet, my father himself looked like he was sleeping, and he was dressed in his very best Sunday suit. We took it in turns after the initial outpouring of grief to sit with him. We didn’t leave dad alone, apart from when we were sleeping.

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Dad spent two and a half days with us at home. We sat with him, held his hands, stroked his hair, sang and talked to him. More family arrived until we were all present. Friends came by, bringing food, neighbours baked cakes and lasagnes.

In the evenings, we siblings sat around the dining table, spending hour after hour going through the old photos. There were boxes to view and sort and distribute between us. Each day, we selected another room of the house to clear out and sort through. The contents of our parents’ lives spread before us.

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Although it almost felt disrespectful to touch their belongings, two people’s lives and a house full of possessions needed to be resolved.

After dad had been moved to his beloved church and had been given a beautiful, moving ceremony, we laid him to rest, alongside mum in the town’s cemetery.

Tuesday 12th 2019 marked the first anniversary of dad’s death. My sister and I travelled to mum’s and dad’s hometown in order to pay our respects.

We visited the cemetery and cleaned the headstone; we put in fresh flowers and solar lights. We spoke to dad and said some prayers and sang a song. We told him and mum that they’re not forgotten. It was sad but it felt like the right thing to do.

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I came home to the city and my kids musing on the fact sometimes growing up can be hard. I felt sorry for my teenagers and their travails.

In the last two weeks, my youngest son has started high school. He’s made several commitments to teams and groups, at the same time undertaking more chores at home. Tonight, when I asked him to do the ‘umpteenth thing,’ he said, “GROWING UP SUCKS!”

It does, man, there’s no other way of putting it. Yet, the tragedies and the hardships we go through, as we get older and lose more people, are what also shape and craft us into better, deeper, more empathetic human beings.

Sometimes, it sucks, yet, that’s okay. It means another phase of life begins.

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Talk to you later.

Yvette K. Carol

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It takes courage to grow up and become who you really are. E.e. Cummings

 

 

There is something therapeutic about doing nothing, isn’t there. And there’s a real art to it. Some are better at it than others. I have friends for instance, who declare when they’re on holiday, that they’re ‘very good at doing nothing at all.’ Whereas I’m a bit more on your tightly wound scale of things, I like to have things to do or I end up inventing things to do.

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I find myself longing for more stillness. In an article by Colleen Long, Psy.D. over on Pyschology Today, The Art of Doing Nothing Why Italians, Not Americans, Get This One Right, Colleen argues for the benefits of relaxation, citing the Italian term, “La Dolce Far Niente,” which means- the sweetness of doing nothing. Colleen asks the pertinent question of us, when we get home at the end of the day, ‘instead of checking your email one last time to see if anyone else is needing you to do something, instead of using your free time to check your bank accounts or pay that cell phone bill- What if you just did nothing?’ Provocative question isn’t it!

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What gets me confused is that on the one hand, I want to take the foot off the pedal. On the other hand, summer is ideal for achieving things and making progress with plans and careers. When I’m warm day and night, there is lightness in that. Instead of having to brace against the chill and either do things to provide heating or layer up the clothing to become the Michelin man, I feel more at ease, I’m comfortable and with less material between me and life. I feel things are more immediate. I feel more ready to respond to the demands of every day. I feel more energy, and the days are long enough in which to go on adventures, or travel long distances, or to get more done.

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I find it hard to do nothing. I  always remember my gran at the end of her life, the change she found the bitterest pill of all, in her words, was ‘not being useful.’ She couldn’t bear having all the jobs slowly taken away from her as she grew older and became frailer. She’d prided herself her entire life on being the busiest woman in her community, a lady who could be relied upon to get stuff done, and doing less as she aged made her feel “useless.” I’m cut of her stock. I like to be productive. I am also my father’s daughter, a man who was busy serving his church and community in whatever ways he could into his dying days. It’s a challenge for me, each year in the holidays, to put down my pen – that’s the hardest wrench of all – to put away my gardening tools – I worry about my garden while I’m away – and this year, with my boys in the South Island – I worried about them, too – I got to take off my parenting hat, as well.

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This summer, I was child free for a ten whole days, and in that time, despite myself, I slowed right down to “island time.” I enjoyed it so much! Every day was a study in bliss with my eldest son and his family and my nephew, either swimming or visiting friends, or eating somewhere special every day. After that, I came home to the city so rejuvenated, I thought this slowing down, this art of doing nothing is an art I need to learn more about.

I gather the best place to start is with meditation. In his article, Why Should You Meditate? Gurudev Sri Sri Ravi Shanka relates how Harvard clinical studies have proven meditation to have physical, mental and emotional benefits.

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Recent studies from Harvard University found that long-term meditators have increased amounts of gray matter in the insula and sensory regions, and the auditory and sensory cortex,’ said Gurudev Sri Sri Ravi Shanka. ‘When you meditate, you enter a space of internal expansiveness, calm, and joy. The result is feelings of expansiveness, calm, and joy in waking life, which has an effect on our interactions with others and the world around us.

There seem to be many benefits of meditation, and since it’s all about doing nothing, I feel challenged, and yet, I’m in!

Here are the links to some recommended resources:

How to Meditate for Beginners – 30 Tips, Tricks and Tools

Guided Meditations – Our 12 Best Meditations Now Free on Youtube

These are on my list of goals for the year ahead. In 2019, I intend to meditate! I want to do more nothing! And to have fun!

What about you, how good are you at doing nothing? Have you tried meditation? Tell me more!

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Talk to you later

Yvette K. Carol

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“All profound things and emotions of things are preceded and attended by silence. ~ Herman Melville

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

It’s time for another group posting of the Insecure Writer’s Support Group! Time to release our fears to the world – or offer encouragement to those who are feeling neurotic. If you’d like to join us, click on the tab above and sign up. We post the first Wednesday of every month. Every month, the organisers announce a question that members can answer in their IWSG Day post. I usually start my posts apologizing for being a day late. This month, I apologize for being a week late. Sorry! I’m putting it down to the holidaze.

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OPTIONAL IWSG Day Question: What are your favorite and least favorite questions people ask you about your writing?

Oh, this is a good one. Believe it or not, I’m most often asked about my income. I don’t know why, but people seem to think its okay to ask writers about their pay rates when it’s not a question normally asked of other professions. I guess people are fascinated by the idea of writing books. I’ve heard many authors say, that in making school visits, the question they get asked the most often is, ‘How much money do you make?’

I think of Jack Nicholson’s famous movie rant, “You can’t handle the truth!”

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People imagine they will be the next J.K. Rowling or Stephanie Meyers. People see the blinding success stories of people who write a book and sell millions and become famous. Whereas the truth is those elite writers who make the most money are in the top 5%. The rest of us need to keep our day jobs.

Whenever I talk about authors and making money on social media, I drag out a beloved quote by one of my fellow authors on the children’s collaboration, Kissed By An Angel. Ellen Warach Leventhal said her favourite response from a fourth grader was, “You work hard, you don’t know if you’ll ever get paid for it, and you aren’t rich? Man, not sure I want to do that.”

That’s right. The reality is not very romantic.

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In essence, that’s why millions of people try their hand at penning their first novel every year and why only a small percentage of them will ever attempt a second. They quickly realize the truth all long time writers know; there is no money in it. Think of an author as like being a musician or an artist, or an actor. You do the work for the love of it, because you can’t NOT do it, despite the fact the recompense is uncertain. You supplement your income with other things. You find ingenious ways to save your pennies, you grow your own fruit and vegetables, you shop at thrift stores, you recycle things, and you make life work.

You don’t do this job for the money.

When people ask what my yearly income looks like, I go pink. I can’t answer the question in any way that comes off making me look good. I can’t say, ‘I don’t make very much money from my books, and yet, I keep publishing them,’ or I’d look like a prize idiot. It’s hard to reply to this question in social settings. It’s a lose-lose situation, folks, so please don’t ask authors this question.

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My discomfort with this stinker is swiftly followed in second place by those who ask, ‘How many books have you sold?’

Now, come on people, do I ask you how much product you moved today? Do I ask you, how many lives you’ve changed? Or anything remotely in that vicinity. This question always makes me feel like being grilled on a hot plate. Just back away, now.

However, if we’re talking about my favourite questions to be asked, they would definitely be, ‘What inspired you to write your book?’ with ‘What’s your book about?’ Because then I’m being asked about my inner process and the creative life, which is my passion and my bliss. I can soar away into these higher thoughts and let my imaginative life come to the fore.

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Chasing the muse is always exhilarating to think about. I feel this sort of information is far more valuable to share, and is of greater service, because those who are truly called to write will take positive juice from it and use that to fuel their own writing endeavours. Then, one feels one is being of service. I would far rather speak to that than the money, because the only answer I have is, ‘I write for the love of it and make income in other ways.’ Hardly motivating.

What about you? What are your favourite and least favourite questions?

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Keep Writing!

Yvette K. Carol

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There is no other feeling like that.
you will be alone with the gods
and the nights will flame with
fire. Charles Bukowski

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

It’s time for another group posting of the Insecure Writer’s Support Group! Time to release our fears to the world – or offer encouragement to those who are feeling neurotic. If you’d like to join us, click on the tab above and sign up. We post the first Wednesday of every month. I encourage everyone to visit st a dozen new blogs and leave a comment. Your words might be the encouragement someone needs.

Every month, the organisers announce a question that members can answer in their IWSG Day post. Remember, the question is optional!!!

This month’s co-hosts:  Dolorah @ Book Lover, Christopher D. Votey, Tanya Miranda, andChemist Ken!

InsecureWritersSupportGroup

OPTIONAL IWSG Day Question: How do major life events affect your writing? Has writing ever helped you through something?

There was a time, not too long ago, when I wasn’t drawn to the idea of the optional IWSG Day Question. I preferred to write what I wanted to write instead. Then, one day I was stuck for ideas, so I turned to the question offered. And, I’ve been a convert ever since. I’ve only missed one month and that was because I couldn’t come up with an answer! But, apart from that, I’ve come to relish the Question – even looking forward to it – to see what the clever upper-ups at IWSG Headquarters have come up with next.

I love the October Question!

 

11717197_10152841846311744_1745896926_nWriting has helped me through every hard time and helped me to get through every trial I’ve experienced. There have been times, after the losses of family members, when I’ve stopped writing altogether. Dried up and couldn’t write, at the same time I didn’t want to be near anything about the online world, at all. There have been times when I’ve needed to retreat in silence and stillness and be with the grief.

After hard times, writing was my way back into the world of people, and into the fray via the internet. Sometimes, I would resist for longer than others. But, eventually, every time I suffered a blow and was devastated, I returned to my normal life by sitting and translating what I had been through into words. Writing blog posts, writing for my monthly newsletter, writing fiction.

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Writing always provided the catalyst for my positive evolution, through the sadness and out onto the other side, of having grown through the experience.

In that place, I could contribute again and be of service through writing my stories, and other stuff, along the way.

My father died in February of this year. Within about three hours of getting the news he had passed, I was off the grid. I’d sorted out what needed to be done for the household to run and for the world to excuse the boys and I for a week. Then, we were on the road for my parents’ seaside town. I stayed off line and away from my cell phone, feeling  I needed all my energy and attention on the unfolding events as we laid dad to rest.

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We returned home, and I was a different person. I could feel it, I knew it. You are so changed when you lose someone important in your life. I’d always suspected losing dad would be the most painful, and so it was. I couldn’t face writing or any sort of social media. I remained in this “other” space for weeks. I’d cried so much over the week of sitting with his body and then burying him that I was completely dry of tears. I had wept until I couldn’t shed anymore. So, I did my daily exercises and tended to the kids, ran the household, and went to Toastmasters, gave speeches, without really being there.

I was on automatic without being fully engaged in my life.

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One of my fellow Toastmasters said I had lost weight that she could see it in my face, and she expressed worry about me, which really touched my heart.

One day, I opened my computer and I made myself open my work-in-progress. I sat in front of my laptop, and I started editing and rewriting and the energy started to flow again. I felt myself literally coming to life, through the passion I have for my stories. My writing ushered me up from the void into the land of the living again. I was once again able to engage with my children and others in my life fully and I was working on my book.

I felt such deep gratitude!

Has writing ever helped you?

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Keep Writing!

Yvette K. Carol

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I put things down on sheets of paper and stuff them in my pockets. When I have enough, I have a book. ~ John Lennon

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

The stage that I’m at now with my kids, the eldest has his own family while I still have two teenagers at home. The youngest is halfway into his first year as a teen. He’s navigating new waters of social interaction with his peers. He’s figuring out how to stand on his own two feet. The middle son is special needs, with Downs’ syndrome and Autism. But, if you take some broad sweeps of the brush, there are many ways in which adolescence is universal.

Being a teen is confusing

Life suddenly becomes more complex. For instance, the youngest has become embroiled in intrigues and dramas at school between the groups of friends. He’s stuck as mediator and counsellor and he’s trying to unravel seemingly endless knots of disputes. There’s tension in every section. He comes home from school, more often than not, frowning, talking to himself; chock full of “teen angst.”

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It’s pressure-filled

You would not believe the amount of pressure these new teens put each other under to ‘find a girlfriend or a boyfriend.’ By the second term, the youngest had gained a “girlfriend.”

It’s a rollercoaster ride

Luckily, he doesn’t expect me to help. He only tells me the occasional insight, the shortened update that comes after he’s figured something out. I’m glad for that. Even the précis of his adolescent spats, are so convoluted they could suck all time for productive worthwhile endeavours into them like teenage black holes.

I do not envy my boys this stage in life. I wouldn’t go back there for a million dollars.

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What can I do, as the parent of these teenage boys?

I’m constantly juggling balls in the air, balancing the day-to-day stuff of running a family, while walking the knife edge of constantly gauging their wellbeing. When you’re the mum in such a situation as this, you learn to spot fires and put them out before they get out of control. If you don’t want World War Three in your house, you get to vet the teenagers’ emotional, mental and spiritual wellbeing throughout each day.

I think parenting teenagers is just as exhausting as the pre-school years. It takes every ounce of savvy and screws every drop of resolve out of you, and as with all parenting, it requires your time and doesn’t let up for a minute.

With the middle child’s recent diagnosis of autism, I’ve learned to apply the rapid salve of one-on-one time. Instead of waiting for the teenage angst to send him to Mars, each time I notice him becoming restless, I suggest we do an activity together.

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We’ve played cards, board games and balloon tennis. He’s responded wonderfully to this diversion tactic, and there have been less aggressive outbursts.

While having one-on-one time works with my special son, it doesn’t work as well with my youngest son, who is starting to value hanging out with his friends, on line and at school, above spending time with mum.

I googled ‘tips or how to raise teens.’ These are my own versions of the tips which have worked for me, so far:

Let them grow up

A bit of trust goes a long way. Teenagers want to be respected. I’ve given the youngest more rope this year than he’s had before. This year, he’s started to stay late after school, and visit friends on the way home. He’s got a later bedtime and has more freedom.

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Set out the guidelines

I’m a firm believer in letting the kids know what the rules are in the house.

Give them more responsibilities

Let them do more around the house and do their share.

Have consequences

When the rules are broken, it’s time out on their own for ten minutes and they can’t return to the family until they’re ready to apologize.

 

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Have an open ear

I try to be as open minded as possible. If he feels safe to talk to me, and knows he can trust me, we’re on a good footing.

Talk about risks, discuss game plans for dangerous situations

I try to teach the youngest on how he can protect himself on the internet and in public. On a practical level, it’s important for teens to have a plan for what to do if they need help.  I always make sure the teenager has a cell phone with credit, and that we run through game plans ahead of social situations. I let my teen know that he can call at any hour, and I’ll come get him. The best I can do is provide the information and the safety net. And, pray like crazy, of course.

Hope that helps!

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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‘…if you have raised a few teenagers you will understand that there is some point when sanity is questioned (yours not theirs).’~ Ann Kaplan

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

I’m not on the bestseller list. Yet, as a friend and I were saying in a podcast the other day, it’s not ultimately about having to “sell” our artworks, it’s about having a form of creative expression and how vital it is to our health and well being to express ourselves in creative ways. The crazier the world gets, the more we need to ground ourselves through creative expression, whether that be through art, writing, dance, drama, cooking, music, gardening, or whatever form it takes. It’s a way to be happy and build happy memories which helps us to be healthy.

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I’ve been lucky enough to pursue art and writing throughout my adult life. These things have given me a release valve for the stress and have given me great joy. At the same time, my creative hobbies have given me a solid base in life and a means of transforming energy into something new. Art keeps me on an even keel, and, telling stories is satisfying on a deep level.

Did you know that storytelling is the second oldest profession in the world? ‘Storytelling has a shape. It dominates the way all stories are told and can be traced back not just to the Renaissance, but to the very beginning of the recorded word,’ wrote John Yorke. And, so it does.

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Humankind has always sought to communicate what has yet to be expressed. Since we first developed ways of communicating 150,000 years ago, artistic expression has separated us from the animal kingdom. As author, Terry Pratchett said, ‘Lots of animals are bright, but as far as we can tell they’ve never come up with any ideas about who makes the thunder.’

Our creative pursuits, since earliest times, have defined and refined humanity.

‘Before you can change the world you have to be able to form a picture of the world being other than it appears.’ Humankind’s development comes down to having used our imaginations and creating new things that had never been seen or done before. Our very survival as a species may depend on inventions yet to exist.

Thomas M Madsen, visual artist

Thomas M Madsen, visual artist

I believe for this and many other reasons, it’s necessary to foster the arts. It’s vital we encourage ourselves and one another and our children and grandchildren to express themselves. I say this not only in favour of humankind’s continued evolution, but also, because I came so close to stifling my own child’s creativity.

For about three years, I had resisted the youngest son’s desire to play drums. I made him take piano. At the start of last year, I said to the youngest son, “Shall we sign you up for piano lessons, again?”

He said, “Okay…I will, but only because music lessons make you smarter. What I really want to learn is drums.”

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For the first time, I really heard him, and I realized I have to let him do this. No matter how uncomfortable it may be for us, no matter how big the potential financial input needed, I have to let him have a go at learning drums.

I gave him one term of lessons to see if he liked it. He was a natural and took to it like a duck to water. Within six months of weekly half hour lessons, my son took his first drum exam and passed it ‘with distinction.’ Now, in 2018, he’s just passed second grade, again ‘with distinction.’ He tells me the exhilaration he feels when a piece becomes natural is unlike any other. What a blessing.

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It surprises me, looking back. I saw that even someone like myself, who truly values the arts in every way, had still come close to stifling my son’s artistic outlet, simply because I was on auto-pilot around what I thought he “should” be doing. The only difference – the key that turned it around – was that I listened to him. I think that’s the best thing we can do for our children and young people, is to really listen when they speak.  When I saw what I was doing, I took the youngest out of the piano lessons, started him with drum lessons, invested in a nice drum kit, and he was away.

In the mid-year report, his teacher wrote: ‘His natural talent is showing through, he seems to have an aptitude for picking up drum pieces very quickly, by using his ear, and reading at the same time.’

Of course he does! And last month, he joined the school band for the first time. I’m so glad I opened my ears.

What about you, what is your creative outlet?

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Our ability to create other worlds made us humans. ~ Terry Pratchett

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From the time he was small, my son Samuel has had episodes of erratic behaviour. Talking with my friends who also parent Downs’ syndrome kids, I discovered this can be part of the syndrome. Small stints of bad behaviour seemed to come about in cyclical fashion, and among our circle, we called it ‘running with Diablo.’ Our kids would run wild every now and again, and then it was over as fast as it started. No problem.

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Sam’s episodes have always been doozies though. I put that down to his being a strong, forceful character, a little volcano that needed to let off steam like Mt. Vesuivus. From the age of five-years-old to ten, Sam’s mischievous escapades were epic. He once carried the entire contents of the fridge and freezer into our living room and spread it out on the floor while I was putting out the washing. He once escaped the house by climbing out of the living room window at two o’clock in the morning. One time, he was walking along nicely beside us as we went to school and on the turn of a dime, he burst into running full tilt across the road in front of a Kenwood truck. In the latter two cases, Sam was lucky not to have been killed.

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Sam is no longer a ten-year-old. Now, he’s fifteen, and he’s bigger and stronger than me. His behaviour this year has steadily deteriorated. Tonight, he decided he was leaving with our carer supporter, who had spent a couple of hours helping Sam with homework. Neither the carer supporter, nor I, could stop Sam’s focused march down the drive as he repeated, “Good morning, Sam” over and over. He refused to listen to reason.

For the first time, I felt really afraid, that we’d lost control over him. I couldn’t see the boy I knew in his eyes anymore, his eyes looked blank, and the pupils widely dilated like that of a cat with the wind in its tail.

Then, I remembered something said by a friend whose child is autistic. Her child’s behaviour had gone off the rails at the onset of adolescence. Medication had helped, though it had been trial and error to get the medication right. I grabbed onto this idea like a lifeline. I sent her an email.

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I also remembered a neighbour telling me, her autistic child had started eating chalk and wire. However, medication had stopped the behaviour and he was attending a normal school. Maybe there was hope we could come out of this ditch, too.

The thing is, when Sam was small, he was diagnosed by a specialist as having a dual diagnosis: Down’s syndrome and Autism. But, somewhere along the way the ‘Autism’ tag got dropped. Tonight, I realised, Sam is autistic. He is a dual diagnosis. It might have gone into a latent period, for some reason. And, potentially, in Sam’s case, the trigger for setting it off again was my father’s death. Sam’s behaviour has been totally unpredictable ever since dad died.

I looked up Autism to read about it a bit, to see if my hunch was correct.

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This from Wikipedia: Autism is a developmental disorder characterized by troubles with social interaction and communication and by restricted and repetitive behavior.[3] Parents usually notice signs in the first two or three years of their child’s life.[1][3] These signs often develop gradually, though some children with autism reach their developmental milestones at a normal pace and then worsen.[9]

Tick, tick, tick. All these things applied to my son.

Then, from HELPGUIDE.org I found some tips on How to help your child with Autism thrive

*Provide structure and safety

*Find nonverbal ways to connect

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*Figure out the motivation behind the tantrumIt’s only natural to feel upset when you are misunderstood or ignored, and it’s no different for children with ASD. When children with ASD act out, it’s often because you’re not picking up on their nonverbal cues. Throwing a tantrum is their way of communicating their frustration and getting your attention.

*Create a personalized autism treatment plan

*Find help and support

I decided to reach out for support.

I had joined the Crippled Children’s Society years ago, so there would be someone to advise me on things to do with disability, when needed. However, I never used the service. Tonight, I sent an email to my advocate at CCS, titled, ‘Help.’

We need to see a specialist and sort out a treatment plan. Wish me luck!

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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“Don’t waste a minute not being happy! If one window closes, run to the next window – or break down a door!” – B. Shields

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

Last week, we made a car trip to my parents’ property to meet with other family there. The aim was to get the cousins together and to do some maintenance on the place. It was our fifth official family working bee, and two days after what would have been my father’s 86th birthday. So, this time it was nostalgic for me.

I don’t know about my brother or the kids, but, I really felt dad’s absence this visit. There isn’t that beloved person waiting for you, who has been looking forward to your arrival and has the fire crackling, a pot of hot food on the stove and is ready to make a cup of tea and offer sweet treats. There isn’t anyone. Period.

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We were greeted by an empty house. We had to bring all the fresh food in and start the fire and start cooking dinner. We had to sort out the beds…we had to warm the place up and bring it to life again. And, I admit I felt overwhelmed for missing my father.

It was really sad when mum died. I’m still grieving her loss two years later. But, it’s only been five months since losing dad. And, he was always going to be a different type of loss. He was our primary caregiver, he was always there, loving, strong, ready to do anything for any of us.

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I was feeling bereft.

On the last day there, sorting through some old papers, I came across a poem. It had been folded and saved carefully by my father. I read the message titled, ‘A Letter From Heaven’ and the tears began to flow. While I knew logically that it was a poem printed for someone’s service, which dad had liked enough to keep, even so, in my sadness, I interpreted it as a message directly from my father for me. And, I was comforted.

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I’m going to add it onto this post, for those who are grieving. And, you can also find it here on Pinterest: https://binged.it/2LvuWF5

You may notice that in both places there is no author attributed, which I guess makes it anonymous. When I looked it up on Google, there were so many different versions of this letter that it was positively boggling. I like this version, for obvious reasons.

 

A Letter From Heaven

To my dearest family

Something’s I’d like to say

But first of all to let you know

That I arrived OK

 

I’m writing from Heaven

Where I dwell with God above

Where there’s no more tears or sadness

There’s just eternal love

 

Please do not be unhappy

Just because I’m out of sight

Remember that I’m with you

Every morning, noon and night

 

GOD SPEAKS:

It’s good to have you back again

You were missed while you were gone

As for your dearest family

They’ll be here later on

 

I need you here so badly

As part of my big plan

There’s so much that we have to do

To help our mortal man

 

Then God gave me a list of things

He wished me to do

And foremost on that list of mine

Is to watch and care for you

 

And I will be beside you

Every day, week and year

And when you’re sad I’m standing there

To wipe away the tear

 

And when you lie in bed at night

The day’s chores put to flight

God and I are closer to you

In the middle of the night

 

When you think of life on Earth

And all those living things

Because you’re only human

They are bound to bring you tears

 

But do not be afraid to cry

It does relieve the pain

Remember there would be no flowers

Unless there was some rain

 

I wish that I could tell you

Of all that God has planned

But if I were to tell you

You wouldn’t understand

 

But one thing is for certain

Though my life on Earth is over

I’m closer to you now

Than I ever was before

 

And to my very many friends

Trust; God knows what’s best

I’m still not far away from you

I’m just beyond the next crest

 

There are many rocky roads ahead of you

And many hills to climb

But together we can do it

Taking one day at a time

 

If you can help somebody

Who is down and feeling low

Just lend a hand to pick him up

As on your way to go

 

When you’re walking down the street

And you’ve got me on your mind

I’m walking in your footsteps

Only half a step behind

And when you feel that gentle breeze

Or the wind upon your face

That’s me giving you a great big hug

Or just a soft embrace

 

And when it’s time for you to go

From that body to be free

Remember you’re not going

You are coming here to me

 

I will always love you

From the land way up above

Will be in touch again soon

PS: God sends his love.

 

Thanks dad, I needed that. xx

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Talk to you later.

Keep on Creating!

Yvette K. Carol

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Children will not remember you for the material things you provided but for the feeling that you cherished them. ~ Richard L. Evans

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com

It’s time for this month’s group posting with the Insecure Writer’s Support Group! Time to release our fears to the world – or offer encouragement to those who are feeling neurotic. If you’d like to join us, click on the tab above and sign up. We post the first Wednesday of every month. I encourage everyone to visit at least a dozen new blogs and leave a comment. your words might be the encouragement someone needs.

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OPTIONAL IWSG Day Question: What are your ultimate writing goals, and how have they changed over time (if at all)?

That’s a brilliant question because it really made me sit back and think. My goals have changed a lot. When I started penning kids’ fiction as a seventeen-year-old, I was far removed from the reality of being an author.

Believe it or not, when I started out, personal computers were not yet a thing. Although some people had them, no one I knew owned one. And the internet was just a twinkle in the eye of a brainiac, somewhere. I spent the first decade writing the good old fashioned way, with a pen and paper. I was a teenager, starting out in the 1980’s, just following the thread of what interested me in terms of subject matter and genre.

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I worked a string of other jobs and often second jobs as well. Writing stories was what I did in my spare time, and it still is.

When I started out at seventeen, I wasn’t thinking of publication. I was impelled to share my creativity through children’s stories, so I followed it. It took me another ten years to start submitting to publishers. My ultimate writing goal at the age of twenty-seven was simple, to get published and make money.

I have an old book of ‘Intentions,’ which I write up each year like resolutions. I discovered that by the age of thirty my ultimate writing goal had morphed into: “I want my books to be a huge success like Harry Potter.”

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Wow, I sure didn’t aim low in those days. I was quite surprised by the audacity of my intention.

I admit I’ve reduced my ultimate writing goals as I’ve gone along. Which I think boils down to figuring out what you really want to do with your time. As you grow older, time becomes more precious. The entry for 2017 reads: I raise people’s awareness and bring joy, inspire and make people feel better through the power of story.

And with age, you get more realistic. I might not be the next J. K. Rowling.

These days, I’m a stay-at-home mum and caregiver to my thirteen-year-old and my middle son who has Downs’ syndrome. I write part-time. I have two stories published and two books which I self published. My wish list these days tends to focus on more meaningful things like wanting joy, and a sense of fulfilment.

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These days my ultimate writing goal is to write more of what I love.  However, the series I’m writing is anthropomorphic fantasy fiction about insects. It gets some strange reactions at times.

I’ll never forget the response of one assessor to my book,  The Or’in of Tane Mahuta. She said, “Great story, but lose the insects!” I couldn’t lose the insects, they were an integral part of the machine of the story.

One day, I will move on to new fields in fiction. For now, I want to see this series out and do the best I possibly can.

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One of the authors I like is Lee Child, author of the Jack Reacher novels. He’s a real storyteller. Asked to give a tip recently for writers, he said, “Ignore all the tips. It’s got to be 100% your own product. As soon as you start thinking about what you should do, there’s a compromise and the spark goes. You’ve got to do what you want to do.”

Child really gets it. He’s talking about listening to the gut and the heart of the story. I love it. I’m ignoring all the tips. It’s 100% my anthropomorphic fantasy fiction about insects. If I want little critters creeping and flying and turning into human hybrids, I must write them. You’ve got to do what you want to do, right?

I wonder what my intention for 2019 will be? I think it’s going to be something along the lines of ‘I just want to be myself and enjoy the process!’

What about you? What are your Ultimate Writing Goals for 2018? Have you met them yet?

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Keep Writing!

Yvette K. Carol

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In a totally sane society, madness is the only freedom. ~ J. G. Ballard

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Subscribe to my Newsletter by emailing me with “Newsletter Subscription” in the subject line to: yvettecarol@hotmail.com